Rochester-area Healthcare Service Agencies & Support Groups
The following health-related local not-for-profit service agencies and community support groups offer a wide-variety of health and medical services, educational programs, patient support and much more to the Rochester-area.
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AIDS Care is the leading provider of HIV/AIDS services in Rochester and the Finger Lakes and was formed by the January 2010 merger of AIDS Community Health Center and AIDS Rochester. AIDS Care is the only organization in the Finger Lakes region with HIV/AIDS care and support services as our sole focus. On-site services include: Behavioral Wellness, Case Management, Clinical Trials, Dental Screenings, Education, Health Services (including primary and HIV specialty medical care), Hepatitis C Co-Infection Clinic, Housing Services, Laboratory, Neurological Care, Nutrition Counseling, Nutrition Services, Peer Interaction, Pharmacy, Prevention, Smoking Cessation, Substance Use and Addiction Counseling, Support Groups, Testing, Transportation Services, Treatment Adherence Counseling, Women's Health Care. |
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A.C.T for the Children-Rochester (Assisting Children through Transition) A.C.T. is an education program that provides parents with information and strategies to help their children through the often difficult family changes caused by a divorce or separation. The classes teach parents the importance of caring for themselves, how to effectively parent, and ways to reduce the conflict with their former spouse or partner. Classes are taught in two, three and one-half hour, sessions offered one week apart. Two mental health professionals serve as instructors for both sessions. The program is sponsored by the Seventh Judicial District of New York State. |
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Advocacy Services for Abused Deaf Victims ASADV stands for Advocacy Services for Abused Deaf Victims, Inc. Our mission is to provide support for Deaf and Hard of Hearing adults and their children who are or have been victims of domestic violence and or sexual assault. A safe environment of empowering, advocacy, and educational/training services will be offered to them. We believe it is empowering for them to see people like themselves in running the organization. The majority of our officers are women and Deaf. In this way, we act as role models for not only victims but also for the Deaf community.All staff, advocates and volunteers are fluent in American Sign Language. |
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Al Sigl Community of Agencies is a collaborative community network that provides high-quality, cost effective real estate and business services to independent human service agencies that serve children and adults with disabilities and special needs. Member agencies: CP Rochester; Epilepsy Foundation; Medical Motor Service; National Multiple Sclerosis Society Upstate New York Chapter; Rochester Hearing and Speech Center and Rochester Rehabilitation Center. |
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The mission of the Allergy Advocacy Association is to help inform, educate and raise awareness of the public at large and at-risk individuals to allergies and anaphylaxis. Our association will act as a web-based clearing house for information on the dangers of untreated allergic reactions and anaphylactic shock. We will act as an open public forum for new ideas and the latest innovations for treatment of these illnesses. We will seek a leadership role in shaping the direction of public advocacy on related issues and initiatives in the fields of medicine, treatment and legislation. Our association is based in western New York State in the greater Rochester metro area. |
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ALS Association Upstate New York Chapter (Amyotrophic Lateral Sclerosis ) The Upstate New York Chapter was founded to serve the needs of those living with Amyotrophic Lateral Sclerosis and their caregivers. The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. ALSA covers all the bases-research, patient and community services, public education, and advocacy-in providing help and hope to those facing the disease.The ALS Association (National Office and the Upstate New York Chapter) operates under a shared mission: to help people living with Amyotrophic Lateral Sclerosis and to leave no stone unturned in search for the cure. We work together to accomplish our mission. The Upstate New York Chapter focuses primarily on helping local patients and families live with ALS while the National Office focuses primarily on research and advocacy. |
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Alzheimer's Association (Rochester Chapter) The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research. We provide services to those affected by Alzheimer's; advocate for policy change and research funding; and advance research toward prevention, brain health, treatment and cure. The Rochester Chapter provides comprehensive support and educational services to those living with Alzheimer's throughout the nine-county Finger Lakes region which includes Monroe, Ontario, Livingston, Yates, Wayne, Seneca, Schuyler, Steuben and Chemung counties. The mission of the Alzheimer's Association is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. The vision of the Alzheimer's Association is a world without Alzheimer's disease. |
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American Cancer Society B. Thomas Golisano Hope Lodge and Hospitality House Hope Lodge and Hospitality House provides free lodging to cancer patients and caregivers and low-cost lodging to transplant patients and their families receiving lifesaving treatment at hospitals in the Rochester area. More than a place to stay, Hope Lodge and Hospitality House is a "home away from home" offering a comfortable and supportive environment for encouragement and healing. |
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American Diabetes Association (Rochester, New York ADA) New Yorkers are increasingly feeling the effects of diabetes as thousands of people suffer from the disease, and many others may have diabetes and not know it! It is estimated that one out of every three children born after 2000 in the United States will be directly affected by diabetes. That is why the American Diabetes Association's Rochester office is so committed to educating the public about how to stop diabetes and support those living with the disease. Our staff are available Monday through Friday from 9:00am to 5:00pm. |
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American Foundation for Suicide Prevention (Western NY Chapter) The American Foundation for Suicide Prevention (AFSP) is the leading national not-for-profit organization exclusively dedicated to understanding and preventing suicide through research, education and advocacy, and to reaching out to people with mental disorders and those impacted by suicide. The WNY Chapter covers the following counties: Chautauqua, Niagara, Erie, Cattaraugus, Orleans, Wyoming, Genesee, Monroe, Wayne, Ontario, Allegany, Steuben, Tompkins, Yates, Seneca, Chemung, Livingston, Schuyler and Tioga. Our Chapter seeks to prevent the loss of life by suicide through education, research, and outreach. Sadly, one in every 25 lives lost to suicide in this country is a resident of New York State. Our Chapter hopes to play a vital role in preventing the loss of life by suicide in Western New York. |
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American Heart Association - Rochester Division Our Mission: Building healthier lives, free of cardiovascular diseases and stroke. Our Impact Goal: Reduce coronary heart disease, stroke and risk by 25% by 2010. |
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American Red Cross (Greater Rochester Chapter) The Greater Rochester Chapter of the American Red Cross, a humanitarian organization led by volunteers guided by its Congressional Charter and the Fundamental Principles of the International Red Cross Movement, will provide relief to victims of disasters and help all people prevent, prepare for, and respond to personal, community, and other emergencies. |
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American Red Cross Biomedical Services (New York-Penn Region) Welcome to the New York-Penn Region. We are one of the three largest regions in the American Red Cross Biomedical Services system, providing blood products to approximately 101 hospitals throughout upstate New York. The New York-Penn Region aims to make a tangible difference for the better in as many lives as possible by ensuring that quality blood products and services are always there when and where they are needed. |
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Amyloidosis Support Group (Rochester, New York) Upstate NY Amyloidosis Support Group is a local chapter of the National non profit Amyloidosis Support Group Inc. Dedication is to Patient Support and Raising Awareness to the public and medical communities. Guest speakers include Expert physicians in Amyloidosis from Centers of Excellence as Mayo Clinic and BUMC.Amyloidosis. Amyloidosis HOT LINE: Toll Free: 866-404-7539 - Muriel Finkel, president ASG. Visit www.amyloidosissupport.com for more info. |
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The Arc of Livingston-Wyoming is a private, not-for-profit organization providing services to developmentally disabled individuals and their families in the Western New York counties of Livingston and Wyoming. Through its residential, vocational rehabilitation, children's services, transportation, and community services programs, the agency helps to enhance the lives of more than 800 community members who rely on services each year. The Arc Foundation is a private, not-for-profit corporation whose purpose is to solicit and distribute funds for the support of services that maintain and enhance the quality of life for individuals with disabilities and their families. |
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For more than 50 years, The Arc of Monroe County has been providing a variety of programs and services for over 3,500 individuals with intellectual and/or developmental disabilities and their families in the Rochester community with 40 locations in Monroe County. Innovative and award winning. The Arc works to enhance the quality of life and self-esteem of individuals in our programs, providing them with meaningful social development, employment, community living and enrichment opportunities. |
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The Arc of Orleans County is a not-for-profit human service agency that offers support, advocacy and a variety of services and opportunities primarily for individuals with disabilities and their families to pursue their desired quality of life. The Arc of Orleans County is a partnership of the people we serve, volunteers and staff working to improve our community through empowerment/opportunities, holistic approach, natural support, teamwork, productive employment, advocacy, self-sufficiency, appropriate technology, rights recognized by all, ownership, community membership, innovative approaches and valuing diversity. |
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Arthritis Foundation (Upstate NY Chapter) The Upstate New York Chapter serves the following 31 counties in the Buffalo, Rochester, Syracuse, Utica & Binghamton areas: Allegany, Broome, Cattaraugus, Cayuga, Chautaugua, Chemung, Chenango, Cortland, Erie, Genesee, Herkimer, Jefferson, Lewis, Livingston, Madison, Monroe, Niagara, Oneida, Onondaga, Ontario, Orleans, Oswego, Schuyler, Seneca, St. Lawrence, Steuben, Tioga, Tompkins, Wayne, Wyoming and Yates. |
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We at Aspire are driven by the core belief that children and adults with developmental disabilities have the right to realize their full potential and live as independently as possible. Aspire compassionately and relentlessly works toward facilitating this end. Aspire's mission is to help children and adults with developmental disabilities, cerebral palsy, and conditions with similar personal and family effects live their lives to the fullest in keeping with their informed choices. |
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Association for the Blind and Visually Impaired (ABVI) ABVI Mission: To prepare and empower people who are blind or visually impaired to be self-sufficient and contribute to their families and communities. |
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The mission of The Autism Council of Rochester, Inc. is to be the community leader in providing high quality and individualized community integration services. We support youth, young adults, and parents of individuals with Autism Spectrum Disorder (ASD) and other developmental disabilities. We provide ASD awareness training to the community, service providers, educators, and medical rescue personnel. Collaborating with other agencies, businesses and schools we help young adults with ASD to develop work, education, and independent living plans. With the help of our successful therapies, clients will have a better future and will be successful in reaching their goals. We are committed to helping each client develop personally and professionally. |
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Better Days Ahead Family Support Group Better Days Ahead Family Support Network is a service of the Mental Health Association. Staffed by parents who themselves have had children with emotional and behavioral; challenges they provide support to families raising children with similar problems. Though support groups, one-to-one mentoring and educational groups and programs, Better Days Ahead helps parents to identify the strengths within their own families and to develop the skills necessary to raise healthy independent children. BDA also collaborates with service providers and funders to assure that services are responsive to the needs of families. |
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The mission of Bivona Child Advocacy Center is to coordinate and provide services and support to meet the needs of child victims of sexual or physical abuse and their families at a single and safe, child-friendly facility. The Center is committed to reducing trauma, promoting accountability, fostering healing, and advocating on behalf of child victims of sexual and physical abuse. Bivona Child Advocacy Center is the only agency in the Greater Rochester community to provide these services. More than 1,000 children are helped at Bivona each year. |
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Breast Cancer Coalition of Rochester The Breast Cancer Coalition of Rochester's mission is to provide support to those touched by a diagnosis of breast cancer, to make access to information and care a priority through education and advocacy, and to empower women and men to participate fully in decisions relating to breast cancer. |
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Bridges For Brain Injury, Inc. is working to help individuals and bring awareness to the community on the effects of brain injury on individuals and their families. Quality Services are provided to guide individuals with brain injury to rebuild skills in order to complete everyday tasks. Frequently, survivors are placed in nursing homes at a young age or left without a support system to help them cope with their disability. Bridges For Brain Injury, Inc.'s quality services prevent individuals from being inappropriately placed in nursing homes or institutional settings. Bridges For Brain Injury, Inc. allows individuals with brain injuries the dignity of living a more independent and successful life. |
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Camp Abilities Brockport is a one-week, developmental sports camp for children who are visually impaired, blind, or deafblind. The camp is set up to provide a 1:1 instructional situation for each child. Held on the campus of The College at Brockport, State University of New York, Camp Abilities Brockport serves children between the ages of 9 and 19. They vary in socioeconomic status, ethnic background and level of skills and abilities. Since our first year, we have served more than 50 children with visual impairments each year. |
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Camp Good Days and Special Times Camp Good Days and Special Times, Inc. is a 501(c)(3) not-for-profit organization dedicated to improving the quality of life for children, adults and families whose lives have been touched by cancer and other life challenges. All of the programs and services provided by Camp Good Days are offered free of charge for the participants, which is only possible through the generosity of so many individuals and organizations and the success of our many special fundraising events. |
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Cancer Services Program of Monroe County (Formerly the Health Partnership) The Cancer Services Program of Monroe County (CSPMC) pays for breast, cervical, and colorectal cancer screenings for un-insured and under-insured women (ages 40- 64) and men (ages 50 -64). If a screening reveals a diagnosis of breast, cervical, colorectal or prostate cancer and the client has no insurance to cover treatment, the CSPMC will help the client apply for Medicaid Cancer Treatment Program coverage. Case management is also available for those needing additional support and assistance as they go through diagnosis and treatment. In addition, the CSPMC offers coverage for the human papilloma virus (HPV) vaccine for women ages 19 through 26. Appointments for breast exams, mammograms, pap test, and colorectal screenings can be made by calling the Cancer Services Program at 585-224-3070 or 1-877-293-0822. |
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Cancer Wellness Spa of Greater Rochester The Cancer Wellness Spa of Greater Rochester was founded in May, 2006 by Dr. Cynthia Angel, Dr. Brent DuBeshter, and Eileen Grossman who realized the necessity for all cancer patients to have diversionary activities while receiving chemotherapy treatments. Chemotherapy can be emotionally, mentally and physically taxing. It is commonly associated with unpleasant side affects. Providing these activities allows the patients the opportunity to have a more positive experience. The Cancer Wellness Spa of Greater Rochester is a registered 501©3 non-for-profit. |
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CareNet Pregnancy Center of Canandaigua CareNet Pregnancy Center of Canandaigua, is committed to providing women and men with accurate, up-to-date information in order to make informed decisions about pregnancy, sexual health, and relationships. All of our services are FREE and CONFIDENTIAL. CareNet Pregnancy Center of Canandaigua is a community supported Christian organization, made up of staff and volunteers who minister to women and their families. Our focus is on women in challenging situations, who may be faced with an unplanned pregnancy or related sexual concerns. We offer our services and support in a loving, non-judgmental environment. |
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Catholic Charities Community Services Catholic Charities Community Services has been serving persons with disabilities for over 25 years. The agency assists persons with disabilities in gaining the independence, community inclusion and personal individuality that are signs of persons living with dignity. Case management and direct care services are provided to persons with developmental disabilities, traumatic brain injury and those with HIV/AIDS disease. All these services are offered without regard to religion, race, sexual orientation or the ability to pay. These services are offered to persons who live in the area that is defined as the Roman Catholic Diocese of Rochester, NY. It includes 12 counties in central western New York State: Cayuga, Chemung, Livingston, Monroe, Ontario, Schuyler, Seneca, Steuben, Tioga, Tompkins, Wayne and Yates. |
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Center for Autism and Related Disorders, Inc., Rochester Center for Autism and Related Disorders, Inc., is among the world's largest and most experienced organizations effectively treating children with autism and related disorders. Teaching vital skills: language and communication, social, play, theory of mind, executive functioning, overall adaptive behavior, self-help and motor skills as well as reduce/eliminate maladaptive behaviors. |
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The Purpose of Christopher's Challenge is to pay for the typing of samples for individuals willing to become potential donors through the National Marrow Donor Program. Christopher's Challenge is also able to assist with patients' costs not covered by insurance, as well as the many amenities that have been added to the Bone Marrow Unit at Strong Memorial Hospital, such as cots, recliners, laptop computers, and DVD players. Christopher's Challenge is named in honor of Christopher Costello, a young man from Webster, New York, who was suffering from leukemia and in need of a bone marrow transplant. In order to increase the number of people in the Bone Marrow Registry and find suitable bone marrow donors, Christopher's Challenge was established. Through Christopher's Challenge, the initial blood testing saw over 1000 people from the Rochester community added to the National Marrow Donor Program. |
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Committee to Aid Research to End Schizophrenia (CARES) Located in Rochester, New York, CARES was founded in 1986 by Mrs. Barbara Swigert to raise money to support schizophrenia research. As a parent of a daughter with schizophrenia, Mrs. Swigert became aware of the limitations of current treatment and rehabilitation strategies to address this illness, and she became determined to make a difference. Her dream is for science to some day find a cure for schizophrenia and, until that day comes, to find ways to improve treatments and promote greater public understanding and acceptance of those who suffer from this illness. |
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Community Place of Greater Rochester The Community Place of Greater Rochester (CPGR) maintains the traditions of being a neighborhood-based, trusted source for strengthening community by supporting individuals and families. A variety of programs connect people with resources and tools to benefit themselves and their neighborhoods. Program areas include Aging Services, Disability Services, Early Childhood, Family Services and Youth Development and are offered at three sites. Bi-lingual staff is available. |
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Compassionate Friends (Rochester Chapter) The Compassionate Friends is a nonprofit, self-help support organization for families who have experienced the death of a child of any age from any cause. The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive. |
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CompassionNet - Caring for Children and Families A Holistic Approach to the Family's Quality of Life. Reaching beyond the traditional medical model of care, CompassionNet focuses on improving services and support for children with life-threatening illnesses. This unique program assists seriously ill children to live as normally as possible, concentrating on alleviating their suffering and keeping them at home during the course of their disease. Case managers also provide families/guardians of these children access to resources that sustain effective coping and positive family dynamics. CompassionNet case managers address a family's specific concerns and needs in the same way medical teams treat a child's particular disease/condition. The program partners with community-based organizations to identify needs that can be met in the home/community and to arrange or purchase services, many provided by volunteers or donated. |
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Compeer Rochester helps youth and adults overcome the devastating effects of mental illness, such as loneliness, low self-esteem and isolation, through the healing power of friendship. We offer programs providing supportive friendships to people in mental health care or with emotional challenges. Our programs, which serve as a complement to therapy, include one-to-one mentoring relationships, skill-building and interim telephone support. Compeer is recognized as a best-practices model by the American Psychological Association. |
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ConKerr Cancer (Rochester Chapter) ConKerr Cancer provides bright, cheerful pillowcases to children battling cancer and other life-changing illnesses which they receive when they enter the hospital for treatment. 100% of donations goes directly to the project, The pillowcases are sewn by volunteers who range from individual sewers to community groups such as quilting/sewing guilds, scouts, etc. Anyone who is interested can participate! ConKerr Cancer is a 501(c)3 non profit organization. |
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Continuing Developmental Services, Inc. (CDS) CDS is a non-profit organization dedicated to providing quality services to people living with developmental disabilities in Monroe County. CDS is a world-class human services organization which supports people in pursuit of their personal dreams. Currently, we offer programs to more than 1,300 people with developmental disabilities, guided by the belief that everyone deserves both quality and choice of services. CDS began with a group of parents whose goal was to ensure quality services would always be available for their children, no matter their ages. These parents joined together to form CDS, a non-for-profit, private organization. CDS is an organization of highly skilled and dedicated people that offers quality services and opportunities to individuals for their well-being and growth. |
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CP Rochester exists to support people with physical and developmental disabilities in choosing and accomplishing successive individualized life goals. We do this by providing a wide range of services to people of all ages in the greater Rochester area. These services include: |
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Crohn's and Colitis Foundation of America (Rochester/Southern Tier Chapter) Our Mission: To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. CCFA sponsors basic and clinical research of the highest quality. The foundation also offers a wide range of educational programs for patients and health-care professionals, and provides supportive services to help people cope with these chronic intestinal diseases. |
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CURE Childhood Cancer Association CURE Childhood Cancer Association is a nationally recognized innovator in peer support for families with children diagnosed with cancer or blood disorders. For nearly 30 years, CURE has been a forerunner in the concepts of parent advocacy, long-term educational assistance and peer-to-peer support. CURE encourages and assists children, young adults and their families in Rochester and the surrounding region to realistically face diagnosis and treatment, cope with their fears and believe in the possibility of life after cancer. |
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Daystar for Medically Fragile Infants To protect our community's most vulnerable infants, from birth to three years, by providing quality child care and family support in a safe and stimulating home environment. Daystar for Medically Fragile Infants, Inc. is New York State's first and only nursing-supervised medical daycare, and is specifically designed to serve families whose vulnerable babies require care above and beyond the capabilities of traditional daycare. |
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Depression and Bipolar Support Alliance (DBSA) of Rochester & Canandaigua DBSA Rochester is a non-profit group composed of people who have (or suspect that they have) depression or bipolar disorder. We have peer-led self-help support group meetings for those with the disorder (where family and friends are welcome). Two related self-help groups exclusively for friends and family members and for parents of bipolar children also meet in our area. See our Meetings page for details. We are a local affiliate of the Depression and Bipolar Support Alliance (DBSA), which is headquartered in Chicago. We are committed to providing information and peer support to people with depression or bipolar disorder (manic depression), and their families and friends. We support, empower, and advocate for people with these and related mental illnesses. Our mission is to raise awareness and knowledge about these disorders through education; to encourage persons to seek treatment; to help alleviate the stigma associated with these disorders; to advocate for research; and, to promote mental wellness and recovery in a safe, caring environment. |
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The Dream Factory is a volunteer organization that fulfills dreams for children ages 3 through 18 who have been diagnosed with critical or chronic illnesses. Our local chapter is committed to fulfilling dreams in the Greater Rochester community. The Dream Factory is the only dream fulfilling organization recognizing that a child with a critical or chronic illness faces numerous doctor visits, hospital stays, and medical challenges. Although life threatening illness do fit under our "critical" category, a dream from our organization does not have to be- a child's last wish. We only hope to acknowledge what these amazing children go through each day and show them that something positive can result. Dreams can come true. |
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East House is a private nonprofit mental health agency established in 1966 to provide residential services to adults recovering from mental illness. Today, we provide residential, rehabilitation, and support services to individuals recovering from mental illness and chemical dependency. Services include counseling, case management, education and career development services, independent living skills training, social and recreational activities, family education and support. Services are personally tailored to meet individual needs and coordinated with other service providers. |
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Easter Seals (Western New York Region) Easter Seals New York provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities. The Easter Seals Diagnostic & Treatment Center (DTC) is an innovative and one of a kind facility that serves individuals and families living with special needs in New York's Western Region. The Center offers a wide variety of clinical/medical services for adults and children with developmental and physical disabilities. Our fully licensed, credentialed professionals work as an interdisciplinary team to determine client diagnosis and specifically recommend certain kinds of treatment. |
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Eating Disorders Recovery Center of Western New York The Eating Disorders Recovery Center of Western New York (EDRCWNY) is one of three centers supported by the New York State Department of Health. The centers form an integrated network of specialists that provides a full range of comprehensive services for individuals with eating disorders and their families. Each center arranges case management services, sponsors programs to increase awareness, early identification and referral, as well as participates in collaborative research. Eating Disorder Specialists throughout the EDRCWNY understand the biological, psychological, and socio-cultural risk factors that create and perpetuate eating disorders. |
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Edelman-Gardner Cancer Research Foundation The Sally Edelman-Harry Gardner Cancer Research Foundation was founded in 1984 with an established goal to raise a million dollars for Cancer Research. Based in Hilton, NY the foundation funds research projects in the Rochester area through the University of Rochester's James P. Wilmot Cancer Center. Lessons on the power of a single dollar can be learned from leaders of the Sally Edelman-Harry Gardner Cancer Research Foundation. The group has led nearly 36 years of grassroots fund-raising to support research at the James P. Wilmot Cancer Center. Over the past five years alone, the Foundation has donated $250,000 to the Wilmot Cancer Center for research, and scientists, in turn, have brought $7.6 million to Rochester's effort to find cures. "One of the things we're proud of is how our grants have been multiplied over and over to fund research for cancer cures," says George Edelman Jr., president of the Hilton-based foundation. |
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Eldersource is a legal joint venture of Catholic Family Center and LIFESPAN. This program has served Monroe County residents since 1995 by providing a single access point for obtaining information, guidance and care management services for older adults and their caregivers. Eldersource is staffed by social workers with expertise in the field of geriatrics. Mission: In 1999 Eldersource was designated by Monroe County and the United Way as the single information and referral number for older adults and all persons with disabilities for aging and long term care services. |
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Embrace Your Sisters (emergency financial support for people with breast cancer) Embrace Your Sisters (EYS) fills a unique niche in breast cancer services by providing short-term emergency financial assistance to residents of Livingston, Monroe, Ontario, Seneca, Steuben, Wayne & Yates counties in New York. Many people diagnosed with breast cancer are unable to work during their illness or treatment, adding a huge financial toll to an already difficult struggle. Assistance from EYS eases the financial difficulties of unpaid bills and helps friends focus on their health and families. |
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Embracing Options (Choices for Life) Embracing Options is a community outreach of His Branches, Inc. whose mission is to eliminate the need for abortion by providing support for persons in past and present pregnancies, sharing the Gospel of salvation through Jesus Christ, and promoting a culture of life through education about the sanctity of human life, abstinence, and a moral approach to sexuality. |
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Epilepsy Foundation of Rochester-Syracuse-Binghamton The Epilepsy Foundation of Rochester-Syracuse-Binghamton will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research. Remove stigma, be first-in-mind for innovative programs, provide fast response and high-quality services for people with epilepsy and related disabilities so they may reach their potential. We serve individuals and families without regard to race, color, sex, age, or national origin. Our funds are provided by NYS Office of Mental Retardation and Developmental Disabilities (OMRDD), Department of Health (DOH), Vocational and Educational Services for Individuals with Disabilities (VESID), Epilepsy Coalition of New York State, Inc., United Way, grants and fund-raising. |
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EquiCenter, Inc. began its programming in Mendon, New York in May of 2004, offering a number of therapeutic riding, hippotherapy, vaulting and horsemanship (equine facilitated mental health) sessions. Our goal is to provide a safe, appropriate, productive and enjoyable environment where participants can work toward their individual goals. Horseback riding is a progressive form of therapy for individuals with mental and/or physical challenges. The physical activities involved in horseback riding prove to be an effective tool for improving muscle stimulation, strength, coordination, flexibility, posture and balance. While providing these physical benefits, equestrian activities also increase communication, social and organizational skills, and help to enhance self-confidence, self-discipline, cooperation, teamwork and independence. |
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FACTS (Food Allergies: Coping, Teaching, Supporting) FACTS is a food allergy support group founded in March of 2003 by two local mothers of food-allergic children. Through FACTS, parents and children have an opportunity to network with other families facing similar challenges and find local and national resources to make the job of parenting a child with food allergies a bit less overwhelming. The group provides members a place to give and receive encouragement, learn coping strategies, and find pertinent food allergy information through guest speakers and other informative sessions. Part of our core mission is to educate our community (i.e. schools, day cares, restaurants, summer camps) about the serious nature of dealing with individuals with food allergies. To that end, we offer support to individuals, families, and groups (i.e. presentations). FACTS holds meetings every other month and sponsors a number of food-free celebrations throughout the year. Mission: We are dedicated to providing resources, support and encouragement to families coping with food allergies as well as raising awareness and educating the community regarding the unique needs of these families. |
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The mission of Families in Recovery is create opportunities for healing for children and other family members affected by alcoholism and addiction. Families in Recovery is the result of a singular idea: children of alcoholics can learn to heal. It is the belief of Families in Recovery that through education, support and time, children of alcoholics can recover. To that end, we offer education to children still in alcoholic homes, to adult children of alcoholics, and to those who provide the support network for children of alcoholics. |
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Fibromyalgia Association of Rochester New York FARNY is dedicated to meeting the needs of individuals diagnosed with Fibromyalgia by supporting, educating and informing patients, families, professionals, and the public concerning the nature of this illness and the resources available for self-help. |
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Finger Lakes Donor Recovery Network (FLDRN) Finger Lakes Donor Recovery Network (FLDRN) is a not-for-profit, hospital based organ procurement program that facilitates the donation and transplantation of organs and tissue in New York state's Finger Lakes, Central and Upstate regions. FLDRN offers the following services: Bereavement and Counseling Services: FLDRN coordinators offer the option of donation to families and support them in their decision. |
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Finger Lakes Parent Network Inc. Finger Lakes Parent Network Inc. offers family support services in the nine counties of Wayne, Ontario, Seneca, Yates, Schuyler, Steuben, Chemung, Tioga and Allegany. Collaboration between families and service providers is integral to the program. The program began in July 1990 as the Finger Lakes Family Support Project with a grant from the NYS Office of Mental Health and was sponsored by the Steuben County Department of Community Services with the support of Pathways Inc. and the Steuben Church People Against Poverty (SCAP). The project was directed by a professional staff member of Elmira Psychiatric Center (EPC). Caregiver support groups were facilitated by a Family Consultant and EPC support staff; they also offered on-site childcare opportunities in Ontario, Wayne, Steuben and Chemung. |
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Flower City Down Syndrome Network, Inc. (FCDSN) The Flower City Down Syndrome Network, Inc. (FCDSN) was begun in 1991 by a group of local families. Laura Khederian and Peggy Schoenfelder were two parents looking for a network of support for their children with Down syndrome. Finding that there were no groups in the Rochester area, they sent out a call for help from other support organizations and individuals and began their own network. Today, the FCDSN has a Board of Directors, sponsors 2 yearly Member Appreciation events, hosts 2 major fund raisers each year, collaborates with Strong Genetics to create information packets for parents that receive a positive diagnosis of Down syndrome for their child through amniocentesis or CVS, maintains 4 Social Groups for various ages of individuals with Down syndrome and their families, hosts a yearly Day-long Conference for FCDSN members, offers Cash Reimbursement programs for its members, and has hired a part-time paid staff person to assist in the organization of our many programs and our invaluable volunteers. |
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Foodlink's mission is to empower at-risk communities by providing food, nutrition, education and resources in Central and Western New York. Foodlink's vision is to end hunger, build self-sufficiency, and foster nutritional wellness. We pursue this vision through an innovative network of initiatives. |
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Friends and Families Muscular Disorders Foundation Friends and Families Muscular Disorders Foundation is a non for profit organization to honor those who have a muscular disorder by raising funds and awareness through unique charitable events and actives. To grant and award money to medical and educational intuitions for new programs to help people with and too help other groups and individuals who may need a helping hand in a need of financial difficulties in Livingston, Monroe, Genesee, Erie Counties and through out New York State. Funding for a pair of leg braces and even helping with fixing a wheelchair that all cost money. Many families have trouble affording these essential items because of the mounting cost associated with these diseases. |
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Future Care Planning Services provides comprehensive life care planning services that assure peace of mind and a legacy of love for the caregiver while providing choices and autonomy for the person with a disability. We believe that each person has inherent dignity and inalienable rights. We utilize a person- and family-centered approach that respects cultural diversity and lifestyle differences in all our interactions. We believe that life care planning is important for all persons with a disability. Planning should be provided in a nonthreatening, respectful manner. If you or someone you know cares for an adult with a disability, Future Care is a nonprofit organization dedicated to helping create a comprehensive plan that addresses critical issues, such as wills, benefits, health insurance, powers of attorney and health care proxies, supplemental needs trusts, community services and much more. |
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The Genesee Dietetic Association, Inc. targets services and nutritional information to its members, the community and other health professionals in the greater Rochester area. The organization, with a scientific, behavioral, and educational base, focuses on preventive and therapeutic nutrition throughout the life cycle. The Genesee Dietetic Association is a district association of the New York State Dietetic Association, which is affiliated with the American Dietetic Association. |
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Gilda's Club provides a meeting place for men, women and children living with cancer, along with their family and friends. They join with others to build social and emotional support as a supplement to medical care. Free of charge and non-profit, Gilda's Club offers support and networking groups, lectures, workshops and social events in a non-residential, homelike setting. Gilda's Club is funded through the generosity of private individuals, corporations, foundations, and grants. |
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Grace Community Services provides a variety of certified programs and services to individuals with intellectual and developmental disabilities. Since our inception in 1988, we have prided ourselves in providing the best quality of care to the individuals we serve. In an effort to ensure attention to the details of each person's life, we have made a commitment to remain a highly individualized program. Our person-centered philosophy embraces all aspects of each individual's life. |
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Happiness House is a not-for-profit educational, health and human service agency that has been serving communities in the Finger Lakes region of upstate New York since 1969. Happiness House is a United Way funded agency and is an affiliate of Cerebral Palsy Associations of New York State. Services are provided in conjunction with the NYS Office of Children and Family Services, the NYS Education Department, the Department of Health and the Office of Mental Retardation and Developmental Disabilities. Happiness House is an educational, health and human service organization that excels in providing the highest quality integrated programs and services to children and adults with and without disabilities, to their families and to the Finger Lakes community. Our belief in the principles of equal opportunity, independence and realization of individual potential is the cornerstone of who we are and what we do. We believe "What Happens Here Changes Lives Forever". |
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The mission of Harbor House of Rochester Inc. is to serve as an invaluable support for families by providing temporary lodging needs during health emergencies and for periods of long-term care. It offers an environment of safe and supportive living that eases the burdens on families during these difficult times, providing a "home-away-from-home" in an effort to reduce the emotional and financial stress. Plans for the future of Harbor House call for additional houses to further meet the needs of visiting patients and their families. Harbor House of Rochester Inc., founded in 2008, is a not-for-profit organization dedicated to helping patients and families who are experiencing this hardship. |
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Harmony Place: Adolescent Eating Disorders Residential Treatment Program Harmony Place is an adolescent eating disorders residential treatment program located in Rochester, New York. We opened in October 2009 to provide an intensive level of care to help girls and boys who are struggling with chronic, severe eating disorders. We offer the the only free-standing residential program in New York State and fill a vital place in the continuum of care for adolescents diagnosed with anorexia nervosa and bulimia nervosa. Harmony Place is licensed by the New York State Office of Mental Health and we are a founding member of the New York State Comprehensive Care Center for Eating Disorders. Through this membership, Harmony Place is affiliated with Golisano Children's Hospital at Strong, where acute care is available to Harmony Place clients as needed. |
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The desire for independence never grows old, which is why quality home-based health care that is safe and successful is so important. At HCR Cares, our research and educational activities focus attention and advance knowledge in key aspects related to independent living. As we foster best home care practices and identify new ways to serve those whose independence is challenged, available services are enhanced. |
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The goals of the Healthy Start Center are: To reduce infant deaths, premature deliveries, and low birth weight babies among women in the city of Rochester. To provide women the resources to help themselves improve the health of their infants and families through confidentiality, respect, dignity, and encouragement. The Healthy Start Center offers the following free services: Pregnancy Education Classes, Breastfeeding Coaching, Health Education, Parenting Skill and Infant Care Classes, Stress Management and Relaxation Groups, Quit Smoking Counseling, Mental Health Counseling, Nutrition Classes. Healthy Start is a collaboration (partnership) with the Perinatal Network of Monroe County and Unity Health. For more information on how you can become a Healthy Start participant, please call the Center at (585) 368-3490. |
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Hearing Loss Association of American (Rochester Chapter) HLAA, Rochester (formerly SHHH) is the Rochester, NY chapter of a national organization. Formed in 1983, we have over 200 members who join together to help themselves and each other live as fully as we can with our hearing loss through education, advocacy, and community support. Our members come from all walks of life. HLAA, Rochester Chapter is a not-for-profit volunteer group. HLAA is the nation's foremost membership and advocacy group for people with hearing loss. HLAA offers: Support , Education and Advocacy. |
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Heartbeats for Life! is primarily a heart disease reversal support group. In the Rochester, NY, area alone, there are thousands of heart-related medical incidents per year, including heart attack and stroke. Heartbeats is dedicated to reversing, reducing and preventing heart disease and related illnesses such as diabetes and obesity. The group was founded in 1995 by heart patients who were looking for non-invasive approaches to their treatment. It was founded under the name The Ornish Support Group of Greater Rochester (OSGGR). |
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Heritage Christian Stables (Webster, NY) Heritage Christian Stables is a therapeutic riding program for children and adults, accredited by NARHA (North American Riding for the Handicapped, Inc.). With the assistance of highly skilled riding instructors, physical therapists, and hundreds of dedicated volunteers, this program provides an exciting opportunity for physical, mental, emotional and spiritual growth. Located at 1103 Salt Road in Webster, NY. Telephone: (585) 872-2540. |
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Hickok Center for Brain Injury The mission of the Hickok Center is to provide a safe and supportive environment that encourages brain injury survivors to design and direct their own life's journey. If you or somebody you love is a survivor of a brain injury then the Hickok Center for Brain Injury may be for you. In February of 2006, the Hickok Center for Brain Injury was approved by the Department of Health to provide Independent Living Skills Training (ILST). ILST is one-to-one skill training provided to people with brain injuries funded by the Department of Health Traumatic Brain Injury Waiver. Currently, The Hickok Center provides ILST services in Prevocational Development, Academic Support and Personal Fitness Training. |
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Hillside Family of Agencies is one of the largest non-profit agencies in New York State and has been a cornerstone of the Rochester, NY, community for more than 170 years. Two of Hillside's service affiliates, Crestwood Children's Center and Hillside Children's Center, trace their roots to the 19th century, when they were founded as a hospital for infants and an orphanage, respectively. Today, Hillside Family of Agencies functions as an efficient system of care consisting of affiliates Crestwood Children's Center, Crestwood Children's Foundation, Hillside Children's Center, Hillside Children's Foundation, Hillside Work-Scholarship Connection and Snell Farm Children's Center. |
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Human Touch Initiative (HTI) is a 501(c)3 not-for-profit organization begun in August 2008 by Kim Ross, a Rochester-area licensed massage therapist who is trained in oncology massage. HTI's mission is simple: We want to provide free or low-cost access to integrative therapies for local residents who have a cancer diagnosis. |
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Ibero-American Action League Developmental Disabilities Division The Ibero-American Action League has been providing services to the community since 1968. Over the years, we have progressed into an agency that has 21 sites and employs 270 diverse employees. We are particularly proud of the different programs that we offer and how every day we help change lives and ensure self sufficiency for those that we serve. The Developmental Disabilities Division provides alternative residential housing and advocacy services for people with developmental disabilities and their families. It provides developmentally-disabled people employment, vocational and day habilitation services. Services provided include assisting individuals diagnosed with autism, learning disabilities, cerebral palsy, mental retardation, and epilepsy. |
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Juvenile Diabetes Research Foundation (Rochester New York Chapter) The Rochester New York chapter of the Juvenile Diabetes Research Foundation was founded in 1996. Since then the organization has grown dramatically and currently raises more than $1,400,000 on a local level through donations, major gifts sponsorships and fundraising events. The Rochester Chapter includes the following counties: Monroe, Ontario, Wayne, Yates, Chemung, Steuben, Livingston and Schuyler. Our major fundraising events include the WALK TO CURE DIABETES in Rochester and the Southern Tier and the Hope for a Cure Gala in Rochester. In 2008, the WALK TO CURE DIABETES raised more than $800,000 in the Rochester and Southern Tier areas with the help of more than 300 WALK TEAMS! In addition to fundraising events, we also provide a support group that meets throughout the year for children and young teens with type 1 diabetes and their parents. |
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Kidney Cares of Western New York The Mission of Kidney Cares is to serve local neighbors including patients and families with information, educational services, and support related to kidney disease. We will be a nexus for patients, and medical providers in our local kidney community. We are a group of volunteers, many who were local board members of the National Kidney Foundation's division located in Rochester and Buffalo. In late June 2011, the national organization scaled back its local staff and services in reaction to severe financial issues at the national level. That's when we began to form a new non-profit to focus on local needs. We are a large group of volunteers, doctors, social workers, and business people. Some of us have had kidney transplants, others have donated kidneys, and many of us have friends or relatives who have kidney disease. What we all have in common is a passion for helping patients and families with information and support, and we do that with the help of many, many volunteers - just like you. |
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Kids Adjusting Through Support (KATS) The mission of the Kids Adjusting Through Support (KATS) Program at Camp Good Days and Special Times is to help children and their families cope with serious illness or loss, by intervening with a group support and education process. The KATS Program can be applied to a wide variety of traumatic circumstances for families in need everywhere. |
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La Leche League of Rochester, New York La Leche League is an international, nonprofit, nonsectarian organization dedicated to providing education, information, support, and encouragement to women who want to breastfeed. La Leche League of Rochester, New York offers support and information through: Mother to Mother Support -Monthly Meetings - Telephone Help from Accredited Leaders. For referral to the Leader nearest you, phone Lifeline at 275-5151. Lending Library (books on childbirth, breastfeeding, and related subjects), occasional Fathers' meetings, Couples' meetings, sale of books, breast shells and breast pumps. |
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Leukemia & Lymphoma Society (Western and Central NY Chapter ) Western New York & Finger Lakes Patient Services : Patient Financial Aid Program |
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Lifespan is dedicated to providing information, guidance and services that help older adults take on both the challenges and opportunities of longer life. We provide many direct services, we advocate and we guide. We also provide community and professional education. Lifespan is a member of the American Society on Aging, the National Council on Aging and |
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Lifetime Assistance, Inc. is a community leader, providing comprehensive services to children and adults with developmental disabilities and their families. Our goal is to foster independence, self-reliance and respect for individuals with disabilities. Our vision is to help each person reach his or her full potential and realize the opportunities of a lifetime. Lifetime provides a full spectrum of services for persons with Autism, Cerebral Palsy, Epilepsy, Mental Retardation and Neurological Impairments. |
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Lifetime Care is part of a family of companies called the Lifetime Healthcare Companies. Lifetime Care was founded in 1960 (as Genesee Region Home Care). We took the name Lifetime Care in 2005 following the merger of Genesee Region Home Care and ViaHealth Home Care. Lifetime Care is a not-for-profit organization governed by a community-based board of directors that is recognized by the IRS as a charitable organization, and donations are tax-deductible to the extent provided by law. |
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Lupus Foundation of Genesee Valley NY The Lupus Foundation of Genesee Valley is a not for profit 501(c)(3) organization and our mission is: "To serve as a community resource to provide information and support to those affected by Lupus." We promote programs for public and professional education about Lupus; provide patient education and support to individuals impacted by this disease; encourage local research to discover causes and improve methods of diagnosis and treatment of Lupus; and collaborate with local health organizations to improve the quality of life of those dealing with Lupus. We also promote public awareness, and advocate on behalf of Lupus individuals. Our website offers additional information and links to reliable resources. |
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Made the Same (Ovarian & Cervical Cancer Awareness) This organization was founded to help educate young people of the signs and symptoms of Ovarian and Cervical Cancer. Made The Same is a non-profit organization that educates the new generation of adolescents to recognize the risks and dangers of Cervical and Ovarian Cancers and understand the importance of early detection. Made the Same is on its way to be the forefront of awareness through education about Ovarian and Cervical Cancer early detection. Made the Same will present it's information to the younger generation through several outlets. Some being festivals, school events, concerts, and charitable functions. In addition, presentations will be given at school assemblies, events, and numerous classes. Made the Same aims to provide respectable encounters with all persons touched by the subject. It is important to the company to be able to deliver exceptional customer service, while maintaining a trustworthy connection with those willing to support the cause. |
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Make-A-Wish Foundation (Western New York Chapter) The Make-A-Wish Foundation of Western New York is part of the nation's largest and most well-established wish-granting organization, with chapters and volunteers throughout the U.S. and abroad. Our local staff is dedicated to granting the wishes of children with life threatening medical conditions to enrich the human experience with hope, strength, and joy, and maintaining the foundation's grassroots fulfillment of its mission. The work of the foundation is accomplished by a volunteer governing board of directors, a paid staff of dedicated employees, and hundreds of dedicated volunteers. The chapter is a 501(c3) non-profit incorporated in the state of New York, dedicated to sharing the power of a wish. |
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Inspired by affection and respect for Peter Ciaccia, a Pittsford businessman, a number of his friends created Marrow Drive Rochester (MDR), which is an organization dedicated to assisting individuals like Peter who are in need of bone marrow or stem cell transplants. Our Mission is to add more volunteers to the National Marrow Donor Program Registry in hopes that we can save lives. |
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Mary Cariola Children's Center Mary Cariola Children's Center is a special place in Rochester, NY, that serves children with multiple, complex disabilities; public and private schools aren't able to accommodate these children. It was founded in 1949 by Mrs. Mary A. Cariola, along with parents and friends of children with significant disabilities. Mary Cariola Children's Center is able to offer a broad array of clinical and therapeutic services. Our experienced, innovative team of clinicians ensures each child receives the highest level of individualized therapy. |
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About the Mary Lukacs MRI Fund: In honor of the vibrant spirit of Mary this fund has been created to provide individuals in our area the means to pay for an MRI for breast cancer screening. The Mary Lukacs MRI Fund is a registered 501 c(3)Non profit organization. We started this not for profit organization because we want individuals at risk for breast cancer and without the means to pay for an MRI the ability to have one. It's that simple. With your donation to the Mary Lukacs MRI Fund, dollars will be spent to provide MRI's to individuals and hopefully give them more days to live their lives. |
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Mary M. Gooley Hemophilia Center Founded in 1959 by Mary M. Gooley with the help of the Rochester Chapter of the National Hemophilia Foundation (NHF), the Mary M. Gooley Hemophilia Center, located in Rochester New York, has been serving people who suffer from bleeding and blood-related disorders for over 50 years. Our Center was one of the first NHF chapters chartered outside of New York City, and the first free-standing comprehensive care clinic in the nation. We are one of very few combined treatment centers and chapters in the country. |
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Medical Motor Service is a non-profit community organization that provides specialized transportation. We strive to achieve the highest level of safety and customer satisfaction in order to improve the quality of life for people with specialized transportation needs. Medical Motor Service is unique in Rochester and Monroe County, as it is the only not for profit transportation agency whose sole purpose is the provision of specialized transportation services. Medical Motor Service collaborates with a broad range of other not for profit agencies to ensure that people gain access to health and social services. |
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Melissa's Living Legacy/Teens Living with Cancer Melissa's Living Legacy Teen Cancer Foundation is a national non-profit organization founded in and based in Rochester, NY dedicated to helping teens live with cancer. With our medically accurate, innovative, and totally teen-oriented resources, teens with cancer learn about their disease and treatment, discover effective coping strategies, and connect with other teens on the same ride. If you are a teen with cancer or know a teen living with cancer and want to help, you're in the right place! Melissa's Living Legacy seeks to improve the quality of life for all impacted by adolescent cancer - teens with cancer, their families, friends, and health care providers. Our vision is that all teens with cancer have opportunities for life-affirming experiences throughout each stage of their disease. |
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Mended Hearts (Chapter 50 Rochester, New York) Mended Hearts provides help, support, and encouragement to heart disease patients and their families in the Greater Rochester Area through monthly meetings and visiting patients at Rochester General and Strong Memorial Hospitals. Mended Hearts, a national nonprofit organization affiliated with the American Heart Association, has been offering the gift of hope to heart disease patients, their families and caregivers for more than 50 years. Mended Hearts meets at the Henrietta Volunteer Ambulance Facility, 280 Calkins Rd, Henrietta, the third Monday of the month, at 7:15pm. The satellite chapter in Canandaigua meets at the RG&E Family Room (in the M.M. Ewing Continuing Care Center), Thompson Health, 350 Parrish St, Canandaigua at 7:00pm. All meetings are free and open to the public. For more information call our voice mail at 585-234-1538 or go to our website at www.mendedheartsrochester.org |
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Mended Little Hearts of Greater Rochester Mended Little Hearts of Greater Rochester is a nonprofit organization that provides hope, caring and support to families who have children with Congenital Heart Defects (CHD) and heart disease. Membership is free and open not only to parents and caregivers of these special children, but also to heart defect survivors, extended family members, healthcare partners, neighbors, friends and anyone else interested in furthering the outreach and support network of MLH. For more information about Mended Little Hearts, contact Jennifer Kowal at rochesterny@mendedlittlehearts.org or call 585-398-7112. |
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Mental Health Association in Genesee County The Mental Health Association in Genesee County is a non-profit, tax exempt organization, dedicated to the promotion of mental health, the prevention of mental illness, and the improved care and rehabilitation of persons with mental illness. The MHA is located at 25 Liberty Street in Batavia. As an affiliate of the Mental Health Association of New York State and the National Mental Health Association, we have access to program information and other resources from across the state and nation. |
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Mental Health Association of Rochester The Mental Health Association promotes lasting mental wellness through a spectrum of culturally competent programs and services. We help people find the tools and resources that they need to achieve and maintain mental wellness. For over 70 years, we have promoted mental wellness in our community through educational programming, referral to needed services and individualized support and assistance to those in greater need. All of our programs focus on increasing each person's ability to take care of him/herself as they move back and forth along the continuum of mental wellness. We want people to leave the Mental Health Association knowing how to recognize when they need help and the know-how to follow the steps to get it. |
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Mercy Community Services, a ministry of the Sisters of Mercy, works with underserved individuals and families, independent of religious affiliation, providing supportive environments and services with compassion and acceptance, in collaboration with the community of the greater Rochester area. OUTREACH CENTER...meeting the basic health care needs of uninsured and underinsured adults. Health Services include: Primary Health Care, Obstetrics-Gynecology, Physical exams and Immunizations, Chiropractic Care and Massage Therapy, Dental Care (basic), Eye Care and Counseling. Health Screenings include: Diabetes, Tuberculosis, Hypertension and Pregnancy. |
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Our organization was sparked by our founder's daughter Breanna, a Golisano Children's Hospital NICU survivor of a life threatening condition in 2001. Mommies For Miracles, Inc., a 501C(3), not for profit organization was established in August 2003. Breanna continues to be our reason to believe in miracles! Knowing now just how blessed we are to have healthy children in our lives and realizing there are many families not so fortunate, we are inspired to help make temporary separations due to illness or disability less stressful. Our fundraising enables us to purchase comforting items that are typically not funded by the agencies caring for these children. |
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Monroe County Medical Reserve Corps The Monroe County Medical Reserve Corps (MCMRC) is a group of volunteers from health and other fields that serve and support the Monroe County community during public health emergencies and at other times of community need. |
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The Naiades rowing program is committed to serving the physical and emotional needs of cancer survivors. We support women who have faced cancer, or are currently in treatment by providing physical conditioning, rehabilitation, education, and camaraderie. Through our shared rowing experience, we find a means to maintain wellness for our bodies, and courage and determination for our spirit. We find healing on the water through the power of our commitment, and we hope to provide inspiration to all of those who face the challenges of cancer. |
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National Alliance On Mental Illness of Greater Rochester (NAMI) The National Alliance On Mental Illness is dedicated to providing support, education and advocacy to persons and families living with mental illness. For twenty eight years the self -help volunteer driven organization has been serving people of all cultures in Monroe and surrounding counties. We are an independent nonprofit (501c3) agency governed by a Board of Directors and affiliated with NAMI/New York State and NAMI National. We provide a forum for individuals and families to explore effective ways of coping with mental illness. We make available information about mental illness, the service delivery system, community programs and resources, mental health legislation and other associated issues. The National Alliance On Mental Illness has numerous programs including monthly support meetings, classes and educational seminars. The organization strives to improve attitudes and reduce stigma towards mental illness and to advocate on behalf of persons living with mental illness and their families. |
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National Kidney Foundation Upstate New York NKF Serving Upstate New York supports kidney disease and transplant patients through research, patient support groups, public and professional educational programs, and a transportation reimbursement fund for low-income patients. More than 10,000 area residents are on dialysis and thousands wait for kidney transplants. NKF Serving Upstate New Yorkhas a broad area of responsibility to serve individuals in the counties of Chemung, Livingston, Monroe, Ontario, Schuyler, Seneca, Steuben, Wayne and Yates. |
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National Multiple Sclerosis Society (Upstate NY Chapter) The present Upstate New York Chapter of the National Multiple Sclerosis Society was founded by a small group of people with multiple sclerosis in Rochester, New York. The Upstate New York Chapter is nationally recognized as a leader in providing comprehensive service programs for nearly 12,000 people with MS and their families in 50 counties and we continue to remain dedicated "to ending the devastating effects of multiple sclerosis". |
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National Stuttering Association (Rochester Chapter ) If you stutter, you're not alone in Rochester! The NSA is a national non-profit organization dedicated to providing support, hope, education and dignity to people who stutter and their families. The NSA is the largest association of its kind with nearly 80 local chapters in cities across the United States. The Rochester Chapter meetings are an excellent place to connect with those who stutter, share experiences with those who relate, offer speaking practice in a friendly and upbeat atmosphere, and teach social skills for application in everyday life. Contact us if we may be of help to you, or to someone you know who is affected by stuttering. |
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Never Say Never Stables (Horses Healing Hearts) Never Say Never (NSN) is an organization dedicated to a caring, yet simple mission: NSN hopes to provide life-enriching, horse related activities to children and teens living with cancer, long term illness or other serious challenges. The equine assisted activities of our Horses Healing Hearts program were created to connect the healing and unconditional love of horses and other animals to the humans who need them. |
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New Directions of Greater Rochester New Directions of Greater Rochester is a service of the Mental Health Association. New Directions is a member-run organization of adults with psychiatric histories that believes in an individual's ability to recover from a mental illness. Using a variety of approaches, such as mutual support, education and training each individual develops a plan to follow on their path to recovery. New Directions is open M -F from 9:30 to 4 and is located at 919 Culver Road. For more information, call New Directions at 224-2005 today! |
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New Fibromyalgia Support Group The New Fibromyalgia Support Group was started in May of 2010 by Jackie Witkowski, who is also the support group facilitator. The support group was started out of the need for people with fibromyalgia to connect and interact with each other. In addition to offering social support, it was found that continuing education was also needed. Friendship, support and education were the overall basis for the support group. The focus on the group is not always on fibromyalgia itself, but rather on learning to live with the disorder. Sometimes visiting speakers may have a unique or laid back approach instead of a clinical program. However, all the programs offer something different for everybody. Presently there are several couples in the support group and we welcome others to join them! We are currently looking for young women with fibromyalgia (ages 20 to 35) who are interested in joinging a new support group. If you are interested, please contact Jackie at 585-752-1562. |
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Ontario ARC (Ontario County, New York) Ontario ARC is a not-for-profit organization dedicated to assisting individuals with developmental disabilities and their families. We offer personalized services and supports that promote independence, recognize individual uniqueness and value quality of life. We at Ontario ARC, envision a community where people with developmental disabilities are welcomed, involved and respected. To achieve this, we live by our values, creating opportunities for individual growth, decision-making, choice and access to services. |
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PARALLEL (People Allied in Early Loss) Rochester PARALLEL (People Allied in Early Loss) Rochester is a non-profit community organization composed of people who have experienced the loss of a child through miscarriage, stillbirth, and medical termination due to severe health problems with the baby or mother. Our mission statement is that people who experience a loss are not alone. We believe that bereaved people need care, contact and support throughout their grieving process, from others who have been in similar circumstances. We serve Rochester, NY and the 5 county metro area at no charge. |
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Parkinson Support Group of Upstate New York (PSGUNY) Parkinson Support Group of Upstate New York (PSGUNY) has a three-fold mission to support and assist those with Parkinson's disease, their families, care givers and care partners in adapting more positively to the physical, emotional and social changes associated with Parkinson's disease. SUPPORT people with Parkinson's disease and their families; EDUCATE the community about Parkinson's disease; FIND A CURE for Parkinson's disease by supporting research. |
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Pathway Houses of Rochester, New York Pathway Houses of Rochester is an organization recognized in the community as a leader in providing quality services for men recovering from alcoholism and other substance abuse, with a sustained focus on employment and self-sufficiency. All who are accepted into Pathway Houses' program will ultimately achieve successful recovery and re-entry into the community as demonstrated by measurable outcomes. |
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Perinatal Network of Monroe County The Perinatal Network of Monroe County provides information, coordination, and support services to improve maternal/child health in Monroe County, New York. We are an independent non-profit (501c3) agency governed by a Board of Directors. We are supported by funding from the Federal Health Resources and Services Administration (Healthy Start), the New York State Department of Health Bureau of Women's Health (Comprehensive Prenatal Perinatal Services Network), Rochester Primary Care Network, and the Greater Rochester Health Foundation, with additional support from individual and corporate donors. |
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Pet Assisted Therapy of Lollypop Farm The Pet Assisted Therapy (PAT) program of Lollypop Farm has been serving members of our community in a unique and meaningful way for over 20 years. Our volunteers and their therapy animals provide comfort, motivation, inspiration, compassion, affection, and joy to people of all ages and backgrounds. We are able to serve the Rochester community thanks to the dedication of about 60 volunteers and their registered therapy animals. Most of our volunteers have dogs, but we also have five cats, two Guinea pigs and one rabbit in the program. All of our volunteers have completed the rigorous training requirements and are registered and fully-insured with one of three nationally-recognized therapy animal organizations. |
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Planned Parenthood of the Rochester/Syracuse Region Planned Parenthood of the Rochester/Syracuse Region (PPRSR) protects and supports every person's right to make voluntary, informed decisions about sexuality and reproduction in order to lead a healthy and fulfilling life. Planned Parenthood of the Rochester/Syracuse Region is recognized as a leader in building strong families and ensuring that all people have the right to make choices based on their own moral standards. It is the most trusted and reliable source for service and information regarding sexuality and reproductive health. |
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PRALID (People Rebuilding And Living In Dignity) PRALID provides opportunities in Western New York for individuals with traumatic brain injuries, developmental disabilities, and/or people eligible for nursing home care who choose to live in the community. Our services are designed to provide skill building, advocacy, and protective oversight that promote meaningful life choices while preserving an individual's dignity and independence. |
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The purpose of Rochester Area Birth Network is to advocate for health, safety, and informed options in childbearing. Rochester Area Birth Network supports the Mother-Friendly Childbirth Initiative, a wellness model of maternity care issued by the Coalition for Improving Maternity Services (CIMS), a group of individuals and national organizations with concern for the care and well-being of mothers, babies, and families. |
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The Rochester Ataxia Foundation is committed to raising the dollars necessary to engage research communities in seeking a better understanding of causes, and ultimately, a cure for, inherited ataxia. The Rochester Ataxia Foundation will advocate for improved diagnosis, care and treatment of individuals in the Rochester area and in the Northeast United States and will work to raise public awareness of inherited ataxia through outreach and education. |
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Rochester Celiac Support Group A support group for people with celiac disease and gluten intolerance in the Greater Rochester, New York area. An affiliate of the Gluten Intolerance Group. |
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Rochester Eating Disorder Network The Eating Disorder Network is a not-for-profit organization dedicated to providing services and programs for family and friends of adolescents, and adults with eating disorders. Its members are primarily parents and loved ones of young people affected by anorexia nervosa or bulimia, working in concert with health care providers from the Strong Adolescent Eating Disorders Programs at the Golisano Children's Hospital and Unity Health System, as well as Providers in the Community. Its activities are designed to complement the professional therapy that is usually required to treat these conditions. |
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Rochester Eating Disorder Organization (REDO) The Rochester Eating Disorder Organization (REDO) is a non-profit community eating disorders program located in Rochester, NY, that has been helping people overcome problems such as Anorexia, Bulimia, and compulsive or binge eating (overeating) since 1982. We offer weekly support groups and can also provide referrals to professional health care providers as well as health information and literature. Our mission is to provide education and support for individuals who are concerned about unhealthy eating. The goal of our support groups is to promote personal wellness, a healthy relationship with food, and a positive body image. |
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Rochester Hearing and Speech Center (RHSC) For 88 years, Rochester Hearing and Speech Center (RHSC), a non-profit, United Way agency, has served Rochester and surrounding Upstate New York counties. Rochester Hearing and Speech Center identifies, evaluates and provides treatment for children and adults with speech, language and hearing problems. |
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Rochester Prevention Research Center (National Center for Deaf Health Research) PRC Program: In 1984, Congress authorized the Secretary of the U.S. Department of Health and Human Services (HHS) to create a network of academic health centers to conduct applied public health research. The CDC was selected to administer the Prevention Research Centers (PRC) network and to provide leadership, technical assistance, and oversight (www.cdc.gov/prc). Today, CDC supports 33 centers, including NCDHR, associated with schools of public health, medicine, or osteopathy throughout the country. Each center conducts at least one community-based participatory research project with an underserved population that has a disproportionately large burden of disease and disability. |
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Work. Wellness. Independence. These three values have remained at the core of our organization since 1919 when we began meeting the needs of people with disabilities and other disadvantages. Today, we continue this mission: to help people lead a full and active life by delivering outstanding employment, health and wellness, and driver services. It is our hope that everyone who wants to can lead a full and active life. Annually, more than 5,000 people receive services, or participate in programs at Rochester Rehabilitation. |
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Rochester/Finger Lakes Eye & Tissue Bank Rochester/Finger Lakes Eye & Tissue Bank recovers, processes, preserves and distributes eyes and other tissue for transplant, research and medical education; teaches about tissue and organ donation through its public and professional awareness programs; funds transplant-related medical research; and maintains the Regional Donor Pledge Registry. Trained and certified RETB/FLETB tissue bank staff recover ocular, musculoskeletal, skin and cardiovascular tissues. Tissue bank coordinators then process, preserve and distribute this tissue for transplant, research and medical education. |
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Ronald McDonald House Charities of Rochester Ronald McDonald House Charities of Rochester provides a home-away-from-home for families who need to near their children while they are receiving health care in Rochester area hospitals. Further, it supports the health and well being of children and their families in the broader Rochester community by awarding grants. Committed volunteers are an essential element in our success. The mission of Ronald McDonald House Charities of Rochester, NY is to create, find, and support programs that directly improve the health and well being of children. |
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Saves For A Cure is a non-profit organization aimed to help children with their battle against cancer in the Rochester, New York area. Our goal is to help the children and show them, and their families, that there is life after cancer. We want to help in every way we can. With the money donated, we will make a difference in their lives. |
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The School of the Holy Childhood, a non-denominational, non-profit agency, has enriched the lives of people with developmental disabilities for more than 60 years. Our Mission is to prepare children and adults with developmental disabilities for maximum independence and integration in the community through individualized programs and services, in keeping with the philosophy and vision of our founders. We are dedicated to serving our people in an atmosphere of dignity and compassion. |
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Scleroderma Foundation (Tri-State, Inc. Chapter) The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold: |
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Serenity House provides specialized care for the terminally ill, their families and loved ones. Our home, comfortable and tranquil, is an ideal alternative to hospitals, nursing homes, and in-house care. Respect and support for the terminally ill are reflected in our work at Serenity House. Our home, hearts and hands are open to provide a warm, accepting and supportive environment for residents and their loved ones. For those nearing the end of a terminal illness, we will address their physical, emotional, and spiritual needs. We allow them to leave this world with dignity. This holistic, supportive environment also extends into the bereavement process. |
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SIS (SUSTAIN~ INSPIRE~ SURVIVE) The SIS Mission: SIS is committed to improving the quality of life of those battling breast cancer. We do this by providing financial assistance, essential services and quality of life enhancements during treatment to those in need. Behind The Mission: SIS is a non-profit organization established to support patients and survivors who have been afflicted by breast cancer. By providing loving guidance, funding, care and knowledge, we help them regain their dignity and self-esteem as well as emotional and physical beauty. |
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Society for The Prevention of Cruelty to Children (Finger Lakes WIC Program) Finger Lakes WIC operates out of offices in Canandaigua, Newark, Waterloo and Penn Yan and provides services in many locations throughout Ontario, Wayne, Yates, Seneca and Eastern Monroe Counties WIC offers nutrition education, general health education, and breastfeeding support. WIC checks for specific food items are provided at each appointment and can be redeemed at contracted grocery stores. WIC foods include milk, juice, cereal, cheese, peanut butter, dried peas/beans, and eggs. Infant formula is available for those who supplement breastfeeding or choose not to breastfeed. Tunafish, carrots and extra foods are added to the food package for breastfeeding women. |
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Special Needs Sports is a non-profit organization that coordinates child and adult programs created to expose children and young adults with disabilities to the world of sports. Our players develop motor skills, establish physical activity and confidence by participating in a variety of sports offered throughout the course of a year. Players can participate in golf, soccer, basketball, bowling, field hockey as well as other activities that are currently under development. There are three sessions offered throughout the year: fall session, winter session and summer session. |
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Spiritus Christi Mental Health Center The mission of the Spiritus Christi Mental Health Center is to improve community health by providing access to mental health care for adults and children who are uninsured or underinsured. Our volunteer staff of nurses, therapists, doctors, counselors, social workers and advocates provide consultations and medications free of charge. |
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Based in Rochester, New York, St. Joseph's Villa is a nationally-accredited, nonprofit agency that helps children in crisis recover, regain stability, rebuild relationships and return to their families and communities with renewed strength and optimism in their futures. Annually the agency serves nearly 2,000 children, teens and and families through residential, community services, chemical dependency, educational, youth development/diversion, chemical dependency and eating disorders programs. Residential Programs continue to respond to the needs of many teens from who face intense emotional and behavioral challenges that require crucial separation, respite, security and structure. Residential Services include: Residential Treatment Program, a Residential Treatment Facility, a Chemical Dependency Residential Program (LIFE Program), Group Homes, a Community Residence a Teen Mother/Infant Program, an Independent Living Program, and Harmony Place, the only residential program in New York State to treat adolescents with eating disorders. |
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Step It Up For A Cure (cure pancreatic cancer) Step It Up For A Cure is a Rochester, NY based charity established to raise money for pancreatic cancer research. Our mission is to turn our personal pain into something meaningful and helpful in the fight against pancreatic cancer. We hope to make a difference in people's lives and in generations to come by raising the awareness and raising funds to help the research at the Wilmot Cancer Center. |
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The Advocacy Center (Putting People First) The Advocacy Center provides consumer-driven services to support people with disabilities and their families in achieving their goals. Through information-sharing, individual advocacy support, independent service coordination and educational workshops, we advance people's knowledge of resources and help them to build life-long advocacy skills. Our leadership development programs prepare individuals to help others as volunteer lay advocates, to influence policy, and to promote understanding and acceptance of people with disabilities. |
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The Center for Youth Counseling Services The Center for Youth is the best organization to turn to for young people seeking to deal with, explore, or understand issues of importance to them - from their perspective, and on their terms. Started by kids, for kids, all Center services - from counseling, to shelter, to education, to referrals - are rooted in, and delivered with the knowledge that youth want to, and can, take responsibility for their life choices. Counseling Services are FREE, CONFIDENTIAL and based on the VOLUNTARY PARTICIPATION of the youth seeking help. Solutions are planned in partnership with youth and may include Individual and/or Family Counseling. A 24-HOUR CRISIS PHONE LINE provides immediate response, information and refferals. |
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Threshold Center at Community Place Threshold Center at Community Place includes a Health Center that provides a unique opportunity for adolescents aged 12-26 to receive primary and reproductive care in a confidential, comfortable setting. The center is located at 145 Parsells Avenue on bus line No 2 and easily accessed through walk-in or scheduled appointment. It is open evenings till 7 PM on Tuesday, Wednesday and Thursday as well as Saturday 10-2. |
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Tourette Syndrome Association of Greater Rochester and the Finger Lakes The Tourette Syndrome Association of Greater Rochester and the Finger lakes chapter is a non-profit organization dedicated to providing the community with a clearer understanding of individuals with Tourette Syndrome (TS). We offer resources and referrals to help people and their families cope with the problems that occur with TS. We also raise public awareness and counter media stereotypes about TS. |
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Tracy's Hope is a not-for-profit organization funded through private and public donations to provide education, awareness, and screening for Cervical Cancer. Tracy's Hope will also provide testing and/or immunization against HPV (Human Papillomavirus) for young men and women in need of financial assistance. |
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Transplant Awareness Organization of Greater Rochester TAO is an association of individuals that have undergone transplant surgery. TAO members provide support for other transplant recipients, candidates and their families. By sharing their personal experiences, these former patients complement the counseling provided by physicians, social workers and other health care professionals by offering special understanding that comes only from experiencing a transplant firsthand. In addition to offering support, TAO members also participate in special events throughout the year to promote organ donor awareness. TAO of Greater Rochester is a non-profit organization working to improve the quality of life of transplant candidates, recipients and their families. |
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True Child Within (Providing Support and Advocacy for Pediatric Bipolar Disorder) True Child Within held it's first meeting in October, 2002 as a support group for parents with bipolar children. Four months later in March of 2003, we became a local chapter of the Depression and Bipolar Support Alliance (DBSA), a national organization dedicated to improving the lives of those with mood disorders. The group's name at that time, and for the next five years, was DBSA Parents with Bipolar Children, Rochester NY. Under our affiliation with DBSA, we became a corporation and received status as a 501 (c3) organization. |
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UNYFEAT Upstate New York Families for Effective Autism Treatment UNYFEAT is the leading 501(c)3 autism advocacy organization in the Rochester area. Serving families in the Greater Rochester Area, our mission is support individuals with Autism Spectrum Disorder and their families by expanding and enhancing opportunities to improve quality of life. |
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Veterans Outreach Center - Clinical Services / Support Veterans Outreach Center offers several clinical and support services: Counseling and Case Management: Time-limited psychotherapy for veterans and their immediate families is available to help them cope with posttraumatic stress disorder, family difficulties, personal issues, chemical dependency, and any concerns relating to their military experience. You may contact our Clinical staff with questions or to schedule an appointment at 1-585-546-1081 or toll-free at 1-866-906-VETS (8387). Time-limited psychotherapy for veterans and their immediate families is available to help them cope with posttraumatic stress disorder, family difficulties, personal issues, chemical dependency, and any issues relating to their military experience. Crisis intervention and outreach services are provided to homeless veterans, those at risk for homelessness and others who are in need of immediate care. |
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Visiting Nurse Service (VNS) offers complete home health care services for newborns to seniors, whether acutely ill, temporarily disabled or requiring long-term care. You can trust our staff will be professional, caring and responsive. As a full service, not-for-profit, Medicare-certified home health agency, VNS provides nursing care, physical, occupational, and speech therapists, home health assistants, hospice care, medical social work and infusion therapy. |
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Wayne ARC assists, supports and learns from persons with or without special needs and their families. In partnership, each person's needs are identified and a plan of action is cooperatively established to access all available supports and services. Wayne ARC employees are charged with carrying out this Vision and are supported in using their best judgment. The indicator of success as an organization is when each person believes that the action plan and its implementation are meeting his/her needs. |
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The Western New York Wellness, Inc. operates a program designed to offer physical activities to help cancer survivors regain physical fitness. Physical activity has been shown to improve several components of quality of life (physical, functional, and emotional). The WNYWP operates a series of physical activity programs targeted and geared to cancer survivors. The goals of the physical activity program is to engage and motivate people who have survived a diagnosis of cancer to reach their physical and social potential through participation in a program of regular physical activity centered around cycling. This is facilitated by providing opportunities in the form of camaraderie, regularly scheduled chaperoned outdoor bike rides in the spring and summer months, regularly scheduled indoor spin classes in the fall and winter months and year round free access to participating local health clubs. |
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Notice:
Local not-for-profit health-related community service agencies and support groups with a website can submit their agency or group by contacting Rochester Health. Please include a short description of the agency or group and include the website address. Please contact Rochester Health if the agency/group description needs updating.
Non-for-profit service agencies and support groups serving the counties of Monroe, Genesee, Livingston, Ontario, Orleans and Wayne are eligible to be listed.
