National Nonprofit Disease Organizations
Accelerate Brain Cancer Cure (ABC2) Accelerate Brain Cancer Cure (ABC2) believes that a nimble, focused and aggressive entrepreneurial model will increase the number of therapies discovered and then enable those therapies to be more rapidly driven into the clinic. We provide researchers with the pivotal support they need to make critical breakthroughs. We fund novel translational research aimed at finding the fastest possible route to a cure. |
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C3: Colorectal Cancer Coalition C3: Colorectal Cancer Coalition is a nonprofit, nonpartisan advocacy organization that fights colorectal cancer through research, empowerment and access. C3 pushes for research to improve screening, diagnosis, and treatment of colorectal cancer; for policy decisions that make the most effective colorectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable, and beatable. |
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Crohn's and Colitis Foundation of America The Crohn's and Colitis Foundation of America is a non-profit, volunteer-driven organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. It was founded in 1967 by Irwin M. and Suzanne Rosenthal, William D. and Shelby Modell, and Henry D. Janowitz, M.D. Four decades ago, the Crohn's & Colitis Foundation created the field of Crohn's disease and ulcerative colitis research. Today, the Foundation funds cutting-edge studies at major medical institutions, nurtures investigators at the early stages of their careers, and finances underdeveloped areas of research. Educational workshops and symposia, together with our scientific journal, Inflammatory Bowel Diseases, enable medical professionals to keep pace with this rapidly growing field. No wonder the National Institutes of Health has commended the Foundation for "uniting the research community and strengthening IBD research." |
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Depression and Bipolar Support Alliance (DBSA) The Depression and Bipolar Support Alliance (DBSA) is the leading patient-directed national organization focusing on the most prevalent mental illnesses. The organization fosters an environment of understanding about the impact and management of these life-threatening illnesses by providing up-to-date, scientifically based tools and information written in language the general public can understand. DBSA supports research to promote more timely diagnosis, develop more effective and tolerable treatments, and discover a cure. The organization works to ensure that people living with mood disorders are treated equitably. DBSA was founded in 1985. DBSA is a not-for-profit 501(c)(3) organization that answers more than 3,000 calls per month on our toll-free information and referral line and receives over 23 million hits per year on our combined websites. Each month we distribute nearly 20,000 educational materials free of charge to anyone requesting information about mood disorders. DBSA reaches nearly five million people through our educational materials and programs, exhibit materials, and media activities. |
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Down Syndrome Research & Treatment Foundation The mission of the Down Syndrome Research & Treatment Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with Down syndrome. DSRTF sees a new world coming in which people with Down syndrome are fully included in academic and social environments and where they can live independently as adults, if they so choose. In recent years, private and public services, including early intervention, special education and job training, have greatly improved the lives of those who have Down syndrome. Nevertheless, cognitive challenges make it difficult for most to live independently during adulthood, and many experience the early onset of Alzheimer's disease. |
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Food Allergy & Anaphylaxis Network (FAAN) The Food Allergy & Anaphylaxis Network (FAAN) was established in 1991. Anne Muñoz-Furlong founded the organization after her daughter was diagnosed with milk and egg allergy as an infant. She discovered that information vital to raising a child with food allergies was not widely available. Mission: To raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis. |
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Hearing Loss Association of America (HLAA) The Hearing Loss Association of America (HLAA) is the nation's leading organization representing people with hearing loss. According to the National Center for Health Statistics 36 million (17%) American adults have some degree of hearing loss making it a public health issue third in line after heart disease and arthritis. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention and the importance of regular hearing screenings throughout life. |
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Hereditary Neuropathy Foundation (HNF) The Hereditary Neuropathy Foundation (HNF) is a non-profit 501(c)(3) which raises awareness, funds scientific research, and educates the medical community as well as the general public about Charcot-Marie Tooth disease (CMT), offering people with CMT, and their families, medical information and emotional support. HNF is supported by a wide cross-section of medical experts, researchers, professionals, and a huge network of individuals and families from all walks of life. |
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I'M TOO YOUNG FOR THIS! Cancer Foundation Founded by and for young adults affected by cancer, i[2]y -The I'm Too Young For This! Cancer Foundation is the nation's largest support community for the next generation of patients, survivors and caregivers between 15-40. Our mission is to empower young adults affected by cancer by: building community,improving quality of life and providing meaningful survivorship. |
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Juvenile Diabetes Research Foundation The mission of JDRF is to find a cure for diabetes and its complications through the support of research. Type 1 diabetes is an autoimmune disease that strikes children and adults suddenly, and can be fatal. Until a cure is found, people with type 1 diabetes have to test their blood sugar and give themselves insulin injections multiple times or use a pump - each day, every day of their lives. And even with that intensive care, insulin is not a cure for diabetes, nor does it prevent its eventual and devastating complications, which may include kidney failure, blindness, heart disease, stroke, and amputation. |
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Muscular Dystrophy Association (MDA) MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. With national headquarters in Tucson, MDA has more than 200 offices across the country, sponsors 220 hospital-affiliated clinics and supports nearly 400 research projects around the world. |
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National Alliance on Mental Illness (NAMI) From its inception in 1979, NAMI has been dedicated to improving the lives of individuals and families affected by mental illness. For three decades, NAMI has established itself as the most formidable grassroots mental health advocacy organization in the country. Dedication, steadfast commitment and unceasing belief in NAMI's mission by grassroots advocates have produced profound changes. NAMI's greatest strength is the dedication of our grassroots leaders and members. We are the families, friends and individuals that serve to strengthen communities across the country. Due in large part to generous individual, corporate, and foundation donations, NAMI is able to build on its success and continue to focus on three cornerstones of activity that offer hope, reform, and health to our American community: Awareness, Education, and Advocacy. |
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National Breast Cancer Foundation The National Breast Cancer Foundation's mission is to save lives by increasing awareness of breast cancer through education and by providing mammograms for those in need. NBCF accomplishes this mission through various initiatives. NBCF programs provide women help for today and hope for tomorrow. |
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National Coalition for Women with Heart Disease WomenHeart is the only national organization dedicated to promoting women's heart health through advocacy, education and patient support. As the leading voice for the 41 million American women living with or at risk of heart disease, WomenHeart advocates for equal access to quality care and provides information and resources to help women take charge of their heart health. Since our inception, WomenHeart-founded by three women heart attack survivors who transformed the isolation, confusion and ignorance about women's heart disease into a rallying call to save women's lives-has been at the forefront of providing support services to women with heart disease and educating policymakers, health professionals and the public about the urgent need to make women's heart health a priority. |
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National Eating Disorders Association The National Eating Disorders Association (NEDA) is a non-profit organization dedicated to supporting individuals and families affected by eating disorders. We campaign for prevention, improved access to quality treatment, and increased research funding to better understand and treat eating disorders. We work with partners and volunteers to develop programs and tools to help everyone who seeks assistance. NEDA was formed in 2001, when Eating Disorders Awareness & Prevention (EDAP) joined forces with the American Anorexia Bulimia Association (AABA) – merging the largest and longest standing eating disorders prevention and advocacy organizations in the world. The merger was the most recent in a series of alliances that has also included the National Eating Disorder Organization (NEDO) and the Anorexia Nervosa & Related Disorders (ANRED). |
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National Lung Cancer Partnership The National Lung Cancer Partnership (formerly Women Against Lung Cancer) is a 501(c)(3), non-profit organization, originally formed in 2001, and officially incorporated in 2003. Our mission is to decrease deaths due to lung cancer, and help patients live longer and better, through research, awareness, and advocacy. The National Lung Cancer Partnership is a group of leading doctors, researchers, patient advocates, and lung cancer survivors who are working together to improve treatments for lung cancer patients. We are dedicated to raising public awareness of the disease and generating funding for lung cancer research. |
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National Organization for Rare Disorders (NORD) The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. |
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National Osteoporosis Foundation The mission of the National Osteoporosis Foundation is to prevent osteoporosis and related fractures, to promote lifelong bone health, to help improve the lives of those affected by osteoporosis and to find a cure through programs of awareness, advocacy, public and health professional education and research. Established in 1984, the National Osteoporosis Foundation (NOF) is the nation's leading voluntary health organization solely dedicated to osteoporosis and bone health. |
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National Ovarian Cancer Coalition (NOCC) The mission of the NOCC is to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer. Through national programs and local Chapter initiatives, the NOCC's goal is to make more people aware of the early symptoms of ovarian cancer. In addition, the NOCC provides information to assist the newly diagnosed patient, to provide hope to survivors, and to support caregivers. |
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Sickle Cell Disease Association of America Mission: to advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease. |
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Spina Bifida Association (SBA) The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service. |
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The Asthma and Allergy Foundation of America (AAFA) The Asthma and Allergy Foundation of America (AAFA), a not-for-profit organization founded in 1953, is the leading patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world. AAFA provides practical information, community based services and support to people through a network of Regional Chapters, Educational Support Groups and other Local Partners around the U.S. AAFA develops health education, organizes state and national advocacy efforts and funds research to find better treatments and cures. In addition, the mission of AAFA's Web site is to provide online access to AAFA's reliable, validated asthma and allergy information and tools to families, patients, parents, healthcare providers, policymakers and others. |
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The Coalition for Pulmonary Fibrosis (CPF) The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for pulmonary fibrosis (PF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease. The CPF funds promising research into new approaches to treat and cure pulmonary fibrosis; provides patients and families with comprehensive education materials, resources, and hope; serves as a voice for national advocacy of Pulmonary Fibrosis issues; and works to improve awareness of Pulmonary Fibrosis in the medical community as well as the general public. |
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The Leukemia & Lymphoma Society (LLS) The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LLS's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Since the first funding in 1954, LLS has awarded more than $600 million in research funding. |
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The National Headache Foundation The National Headache Foundation exists to enhance the healthcare of headache sufferers. It is a source of help to sufferers' families, physicians who treat headache sufferers, allied healthcare professionals and to the public. The NHF accomplishes its mission by providing educational and informational resources, supporting headache research and advocating for the understanding of headache as a legitimate neurobiological disease. |
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The National Multiple Sclerosis Society The National MS Society is a collective of passionate individuals who want to do something about MS now-to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn't. We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward. |
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Y-ME National Breast Cancer Organization Y-ME National Breast Cancer Organization has been a trusted resource for 30 years and has helped thousands find the information they need to make educated decisions. From articles on our Web site to the knowledge of our YourShoes peer counselors on the 24/7 Hotline, Y-ME keeps you informed. While we don't give medical advice, we do explain in plain language the information you're likely to encounter. No matter what the breast cancer topic is, Y-ME provides information you can trust with a survivor's touch.The only place in the world to call 24/7/365 and talk to a breast cancer survivor. At the heart of Y-ME National Breast Cancer Organization is the YourShoes 24/7 Breast Cancer Support Center, the only place in the world where someone can call –24 hours a day, 7 days a week, 365 days a year - and talk to a breast cancer survivor and be understood in 150 languages. |
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Notice:
The Health Resources section consists of local, state and national health-related resources and information that may be of interest to Rochester-area residents. If an error is encountered with any of the Health Resources links or if outdated or incorrect information is discovered please make Rochester Health aware of the issue and corrective action will be taken... report a problem