Rochester-area Healthcare Service Agencies & Support Groups
The following health-related local not-for-profit service agencies and community support groups offer a wide-variety of health and medical services, educational programs, patient support and much more to the Rochester-area.
AIDS CareAIDS Care is the leading provider of HIV/AIDS services in Rochester and the Finger Lakes and was formed by the January 2010 merger of AIDS Community Health Center and AIDS Rochester. AIDS Care is the only organization in the Finger Lakes region with HIV/AIDS care and support services as our sole focus. On-site services include: Behavioral Wellness, Case Management, Clinical Trials, Dental Screenings, Education, Health Services (including primary and HIV specialty medical care), Hepatitis C Co-Infection Clinic, Housing Services, Laboratory, Neurological Care, Nutrition Counseling, Nutrition Services, Peer Interaction, Pharmacy, Prevention, Smoking Cessation, Substance Use and Addiction Counseling, Support Groups, Testing, Transportation Services, Treatment Adherence Counseling, Women's Health Care. |
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Al Sigl Community of AgenciesAl Sigl Community of Agencies is a collaborative community network that provides high-quality, cost effective real estate and business services to independent human service agencies that serve children and adults with disabilities and special needs. Member agencies: CP Rochester; Epilepsy Foundation; Medical Motor Service; National Multiple Sclerosis Society Upstate New York Chapter; Rochester Hearing and Speech Center and Rochester Rehabilitation Center. |
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American Heart Association - Rochester DivisionOur Mission: Building healthier lives, free of cardiovascular diseases and stroke. Our Impact Goal: Reduce coronary heart disease, stroke and risk by 25% by 2010. |
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American Red Cross (Greater Rochester Chapter)The Greater Rochester Chapter of the American Red Cross, a humanitarian organization led by volunteers guided by its Congressional Charter and the Fundamental Principles of the International Red Cross Movement, will provide relief to victims of disasters and help all people prevent, prepare for, and respond to personal, community, and other emergencies. |
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American Red Cross Biomedical Services (New York-Penn Region)Welcome to the New York-Penn Region. We are one of the three largest regions in the American Red Cross Biomedical Services system, providing blood products to approximately 101 hospitals throughout upstate New York. The New York-Penn Region aims to make a tangible difference for the better in as many lives as possible by ensuring that quality blood products and services are always there when and where they are needed. |
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ARC of Monroe CountyFor more than 50 years, The Arc of Monroe County has been providing a variety of programs and services for over 3,500 individuals with intellectual and/or developmental disabilities and their families in the Rochester community with 40 locations in Monroe County. Innovative and award winning. The Arc works to enhance the quality of life and self-esteem of individuals in our programs, providing them with meaningful social development, employment, community living and enrichment opportunities. |
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Arthritis Foundation (Upstate NY Chapter)The Upstate New York Chapter serves the following 31 counties in the Buffalo, Rochester, Syracuse, Utica & Binghamton areas: Allegany, Broome, Cattaraugus, Cayuga, Chautaugua, Chemung, Chenango, Cortland, Erie, Genesee, Herkimer, Jefferson, Lewis, Livingston, Madison, Monroe, Niagara, Oneida, Onondaga, Ontario, Orleans, Oswego, Schuyler, Seneca, St. Lawrence, Steuben, Tioga, Tompkins, Wayne, Wyoming and Yates. |
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Association for the Blind and Visually Impaired (ABVI)ABVI Mission: To prepare and empower people who are blind or visually impaired to be self-sufficient and contribute to their families and communities. |
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Autism Council of RochesterThe mission of The Autism Council of Rochester, Inc. is to be the community leader in providing high quality and individualized community integration services. We support youth, young adults, and parents of individuals with Autism Spectrum Disorder (ASD) and other developmental disabilities. We provide ASD awareness training to the community, service providers, educators, and medical rescue personnel. Collaborating with other agencies, businesses and schools we help young adults with ASD to develop work, education, and independent living plans. With the help of our successful therapies, clients will have a better future and will be successful in reaching their goals. We are committed to helping each client develop personally and professionally. |
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Better Days Ahead Family Support GroupThe vision of Better Days Ahead Family Support Network is to join together in collective advocacy: to impact our community by empowering families to experience VOICE, ACCESS, OWNERSHIP of choice and effective partnerships with providers in service decisions. Better Days Ahead endorses creative thinking that focuses on family strengths, strives to increase community awareness and supports action toward the provision of responsive services at the time of need. Mission : To empower families of children with emotional and behavioral challenges through the provision of information, referral to services, support, advocacy and respite services to keep their entire family safe and to provide the best environment for their children. |
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Bivona Child Advocacy CenterThe mission of Bivona Child Advocacy Center is to coordinate and provide services and support to meet the needs of child victims of sexual or physical abuse and their families at a single and safe, child-friendly facility. The Center is committed to reducing trauma, promoting accountability, fostering healing, and advocating on behalf of child victims of sexual and physical abuse. Bivona Child Advocacy Center is the only agency in the Greater Rochester community to provide these services. More than 1,000 children are helped at Bivona each year. |
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Breast Cancer Coalition of RochesterThe Breast Cancer Coalition of Rochester's mission is to provide support to those touched by a diagnosis of breast cancer, to make access to information and care a priority through education and advocacy, and to empower women and men to participate fully in decisions relating to breast cancer. |
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Bridges For Brain Injury, IncBridges For Brain Injury, Inc. is working to help individuals and bring awareness to the community on the effects of brain injury on individuals and their families. Quality Services are provided to guide individuals with brain injury to rebuild skills in order to complete everyday tasks. Frequently, survivors are placed in nursing homes at a young age or left without a support system to help them cope with their disability. Bridges For Brain Injury, Inc.'s quality services prevent individuals from being inappropriately placed in nursing homes or institutional settings. Bridges For Brain Injury, Inc. allows individuals with brain injuries the dignity of living a more independent and successful life. |
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Camp Good Days and Special TimesCamp Good Days and Special Times, Inc. is a 501(c)(3) not-for-profit organization dedicated to improving the quality of life for children, adults and families whose lives have been touched by cancer and other life challenges. All of the programs and services provided by Camp Good Days are offered free of charge for the participants, which is only possible through the generosity of so many individuals and organizations and the success of our many special fundraising events. |
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Cancer Services Program of Monroe County (Formerly the Health Partnership)The Cancer Services Program of Monroe County (CSPMC) pays for breast, cervical, and colorectal cancer screenings for un-insured and under-insured women (ages 40- 64) and men (ages 50 -64). If a screening reveals a diagnosis of breast, cervical, colorectal or prostate cancer and the client has no insurance to cover treatment, the CSPMC will help the client apply for Medicaid Cancer Treatment Program coverage. Case management is also available for those needing additional support and assistance as they go through diagnosis and treatment. In addition, the CSPMC offers coverage for the human papilloma virus (HPV) vaccine for women ages 19 through 26. Appointments for breast exams, mammograms, pap test, and colorectal screenings can be made by calling the Cancer Services Program at 585-224-3070 or 1-877-293-0822. |
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Community Place of Greater RochesterThe Community Place of Greater Rochester (CPGR) maintains the traditions of being a neighborhood-based, trusted source for strengthening community by supporting individuals and families. A variety of programs connect people with resources and tools to benefit themselves and their neighborhoods. Program areas include Aging Services, Disability Services, Early Childhood, Family Services and Youth Development and are offered at three sites. Bi-lingual staff is available. |
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Compeer RochesterCompeer Rochester helps youth and adults overcome the devastating effects of mental illness, such as loneliness, low self-esteem and isolation, through the healing power of friendship. We offer programs providing supportive friendships to people in mental health care or with emotional challenges. Our programs, which serve as a complement to therapy, include one-to-one mentoring relationships, skill-building and interim telephone support. Compeer is recognized as a best-practices model by the American Psychological Association. |
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Continuing Developmental Services, Inc. (CDS)CDS is a non-profit organization dedicated to providing quality services to people living with developmental disabilities in Monroe County. CDS is a world-class human services organization which supports people in pursuit of their personal dreams. Currently, we offer programs to more than 1,300 people with developmental disabilities, guided by the belief that everyone deserves both quality and choice of services. CDS began with a group of parents whose goal was to ensure quality services would always be available for their children, no matter their ages. These parents joined together to form CDS, a non-for-profit, private organization. CDS is an organization of highly skilled and dedicated people that offers quality services and opportunities to individuals for their well-being and growth. |
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CP RochesterCP Rochester exists to support people with physical and developmental disabilities in choosing and accomplishing successive individualized life goals. We do this by providing a wide range of services to people of all ages in the greater Rochester area. These services include: |
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Crohn's and Colitis Foundation of America (Rochester/Southern Tier Chapter)Our Mission: To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. CCFA sponsors basic and clinical research of the highest quality. The foundation also offers a wide range of educational programs for patients and health-care professionals, and provides supportive services to help people cope with these chronic intestinal diseases. |
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CURE Childhood Cancer AssociationCURE Childhood Cancer Association is a nationally recognized innovator in peer support for families with children diagnosed with cancer or blood disorders. For nearly 30 years, CURE has been a forerunner in the concepts of parent advocacy, long-term educational assistance and peer-to-peer support. CURE encourages and assists children, young adults and their families in Rochester and the surrounding region to realistically face diagnosis and treatment, cope with their fears and believe in the possibility of life after cancer. |
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Daystar for Medically Fragile InfantsTo protect our community's most vulnerable infants, from birth to three years, by providing quality child care and family support in a safe and stimulating home environment. Daystar for Medically Fragile Infants, Inc. is New York State's first and only nursing-supervised medical daycare, and is specifically designed to serve families whose vulnerable babies require care above and beyond the capabilities of traditional daycare. |
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Depression and Bipolar Support Alliance (DBSA) of Rochester & CanandaiguaDBSA Rochester is a non-profit group composed of people who have (or suspect that they have) depression or bipolar disorder. We have peer-led self-help support group meetings for those with the disorder (where family and friends are welcome). Two related self-help groups exclusively for friends and family members and for parents of bipolar children also meet in our area. See our Meetings page for details. We are a local affiliate of the Depression and Bipolar Support Alliance (DBSA), which is headquartered in Chicago. We are committed to providing information and peer support to people with depression or bipolar disorder (manic depression), and their families and friends. We support, empower, and advocate for people with these and related mental illnesses. Our mission is to raise awareness and knowledge about these disorders through education; to encourage persons to seek treatment; to help alleviate the stigma associated with these disorders; to advocate for research; and, to promote mental wellness and recovery in a safe, caring environment. |
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East HouseEast House is a private nonprofit mental health agency established in 1966 to provide residential services to adults recovering from mental illness. Today, we provide residential, rehabilitation, and support services to individuals recovering from mental illness and chemical dependency. Services include counseling, case management, education and career development services, independent living skills training, social and recreational activities, family education and support. Services are personally tailored to meet individual needs and coordinated with other service providers. |
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Epilepsy Foundation of Rochester-Syracuse-BinghamtonThe Epilepsy Foundation of Rochester-Syracuse-Binghamton will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research. Remove stigma, be first-in-mind for innovative programs, provide fast response and high-quality services for people with epilepsy and related disabilities so they may reach their potential. We serve individuals and families without regard to race, color, sex, age, or national origin. Our funds are provided by NYS Office of Mental Retardation and Developmental Disabilities (OMRDD), Department of Health (DOH), Vocational and Educational Services for Individuals with Disabilities (VESID), Epilepsy Coalition of New York State, Inc., United Way, grants and fund-raising. |
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Fibromyalgia Association of Rochester New YorkFARNY is dedicated to meeting the needs of individuals diagnosed with Fibromyalgia by supporting, educating and informing patients, families, professionals, and the public concerning the nature of this illness and the resources available for self-help. |
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Finger Lakes Donor Recovery Network (FLDRN)Finger Lakes Donor Recovery Network (FLDRN) is a not-for-profit, hospital based organ procurement program that facilitates the donation and transplantation of organs and tissue in New York state's Finger Lakes, Central and Upstate regions. FLDRN offers the following services: Bereavement and Counseling Services: FLDRN coordinators offer the option of donation to families and support them in their decision. |
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Flower City Down Syndrome Network, Inc. (FCDSN)The Flower City Down Syndrome Network, Inc. (FCDSN) was begun in 1991 by a group of local families. Laura Khederian and Peggy Schoenfelder were two parents looking for a network of support for their children with Down syndrome. Finding that there were no groups in the Rochester area, they sent out a call for help from other support organizations and individuals and began their own network. Today, the FCDSN has a Board of Directors, sponsors 2 yearly Member Appreciation events, hosts 2 major fund raisers each year, collaborates with Strong Genetics to create information packets for parents that receive a positive diagnosis of Down syndrome for their child through amniocentesis or CVS, maintains 4 Social Groups for various ages of individuals with Down syndrome and their families, hosts a yearly Day-long Conference for FCDSN members, offers Cash Reimbursement programs for its members, and has hired a part-time paid staff person to assist in the organization of our many programs and our invaluable volunteers. |
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FoodLinkFoodlink's mission is to empower at-risk communities by providing food, nutrition, education and resources in Central and Western New York. Foodlink's vision is to end hunger, build self-sufficiency, and foster nutritional wellness. We pursue this vision through an innovative network of initiatives. |
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Genesee Dietetic AssociationThe Genesee Dietetic Association, Inc. targets services and nutritional information to its members, the community and other health professionals in the greater Rochester area. The organization, with a scientific, behavioral, and educational base, focuses on preventive and therapeutic nutrition throughout the life cycle. The Genesee Dietetic Association is a district association of the New York State Dietetic Association, which is affiliated with the American Dietetic Association. |
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Gilda's Club of RochesterGilda's Club provides a meeting place for men, women and children living with cancer, along with their family and friends. They join with others to build social and emotional support as a supplement to medical care. Free of charge and non-profit, Gilda's Club offers support and networking groups, lectures, workshops and social events in a non-residential, homelike setting. Gilda's Club is funded through the generosity of private individuals, corporations, foundations, and grants. |
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Hearing Loss Association of American (Rochester Chapter)HLAA, Rochester (formerly SHHH) is the Rochester, NY chapter of a national organization. Formed in 1983, we have over 200 members who join together to help themselves and each other live as fully as we can with our hearing loss through education, advocacy, and community support. Our members come from all walks of life. HLAA, Rochester Chapter is a not-for-profit volunteer group. HLAA is the nation's foremost membership and advocacy group for people with hearing loss. HLAA offers: Support , Education and Advocacy. |
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Hickok Center for Brain InjuryThe mission of the Hickok Center is to provide a safe and supportive environment that encourages brain injury survivors to design and direct their own life's journey. If you or somebody you love is a survivor of a brain injury then the Hickok Center for Brain Injury may be for you. In February of 2006, the Hickok Center for Brain Injury was approved by the Department of Health to provide Independent Living Skills Training (ILST). ILST is one-to-one skill training provided to people with brain injuries funded by the Department of Health Traumatic Brain Injury Waiver. Currently, The Hickok Center provides ILST services in Prevocational Development, Academic Support and Personal Fitness Training. |
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Hillside Family of AgenciesHillside Family of Agencies is one of the largest non-profit agencies in New York State and has been a cornerstone of the Rochester, NY, community for more than 170 years. Two of Hillside's service affiliates, Crestwood Children's Center and Hillside Children's Center, trace their roots to the 19th century, when they were founded as a hospital for infants and an orphanage, respectively. Today, Hillside Family of Agencies functions as an efficient system of care consisting of affiliates Crestwood Children's Center, Crestwood Children's Foundation, Hillside Children's Center, Hillside Children's Foundation, Hillside Work-Scholarship Connection and Snell Farm Children's Center. |
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Ibero-American Action League Developmental Disabilities DivisionThe Ibero-American Action League has been providing services to the community since 1968. Over the years, we have progressed into an agency that has 21 sites and employs 270 diverse employees. We are particularly proud of the different programs that we offer and how every day we help change lives and ensure self sufficiency for those that we serve. The Developmental Disabilities Division provides alternative residential housing and advocacy services for people with developmental disabilities and their families. It provides developmentally-disabled people employment, vocational and day habilitation services. Services provided include assisting individuals diagnosed with autism, learning disabilities, cerebral palsy, mental retardation, and epilepsy. |
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Juvenile Diabetes Research Foundation (Rochester New York Chapter)The Rochester New York chapter of the Juvenile Diabetes Research Foundation was founded in 1996. Since then the organization has grown dramatically and currently raises more than $1,400,000 on a local level through donations, major gifts sponsorships and fundraising events. The Rochester Chapter includes the following counties: Monroe, Ontario, Wayne, Yates, Chemung, Steuben, Livingston and Schuyler. Our major fundraising events include the WALK TO CURE DIABETES in Rochester and the Southern Tier and the Hope for a Cure Gala in Rochester. In 2008, the WALK TO CURE DIABETES raised more than $800,000 in the Rochester and Southern Tier areas with the help of more than 300 WALK TEAMS! In addition to fundraising events, we also provide a support group that meets throughout the year for children and young teens with type 1 diabetes and their parents. |
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Kids Adjusting Through Support (KATS)The mission of the Kids Adjusting Through Support (KATS) Program at Camp Good Days and Special Times is to help children and their families cope with serious illness or loss, by intervening with a group support and education process. The KATS Program can be applied to a wide variety of traumatic circumstances for families in need everywhere. |
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La Leche League of Rochester, New YorkLa Leche League is an international, nonprofit, nonsectarian organization dedicated to providing education, information, support, and encouragement to women who want to breastfeed. La Leche League of Rochester, New York offers support and information through: Mother to Mother Support -Monthly Meetings - Telephone Help from Accredited Leaders. For referral to the Leader nearest you, phone Lifeline at 275-5151. Lending Library (books on childbirth, breastfeeding, and related subjects), occasional Fathers' meetings, Couples' meetings, sale of books, breast shells and breast pumps. |
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LifespanLifespan is dedicated to providing information, guidance and services that help older adults take on both the challenges and opportunities of longer life. We provide many direct services, we advocate and we guide. We also provide community and professional education. Lifespan is a member of the American Society on Aging, the National Council on Aging and |
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Lifetime CareLifetime Care is part of a family of companies called the Lifetime Healthcare Companies. Lifetime Care was founded in 1960 (as Genesee Region Home Care). We took the name Lifetime Care in 2005 following the merger of Genesee Region Home Care and ViaHealth Home Care. Lifetime Care is a not-for-profit organization governed by a community-based board of directors that is recognized by the IRS as a charitable organization, and donations are tax-deductible to the extent provided by law. |
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Lupus Foundation of Genesee Valley NYOur Mission: To serve as a community resource to provide information and support to those affected by Lupus. Some of the Purposes of this non-profit organization: Promote programs of public and professional education about Lupus; Provide patient education and support to individuals impacted by this disease; Encourage local research to discover causes and improve methods of diagnosis and treatment of Lupus; Collaborate with local health organizations to improve the quality of life of those dealing with Lupus. |
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Make-A-Wish Foundation (Western New York Chapter)The Make-A-Wish Foundation of Western New York is part of the nation's largest and most well-established wish-granting organization, with chapters and volunteers throughout the U.S. and abroad. Our local staff is dedicated to granting the wishes of children with life threatening medical conditions to enrich the human experience with hope, strength, and joy, and maintaining the foundation's grassroots fulfillment of its mission. The work of the foundation is accomplished by a volunteer governing board of directors, a paid staff of dedicated employees, and hundreds of dedicated volunteers. The chapter is a 501(c3) non-profit incorporated in the state of New York, dedicated to sharing the power of a wish. |
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Mary Cariola Children's CenterMary Cariola Children's Center is a special place in Rochester, NY, that serves children with multiple, complex disabilities; public and private schools aren't able to accommodate these children. It was founded in 1949 by Mrs. Mary A. Cariola, along with parents and friends of children with significant disabilities. Mary Cariola Children's Center is able to offer a broad array of clinical and therapeutic services. Our experienced, innovative team of clinicians ensures each child receives the highest level of individualized therapy. |
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Mary M. Gooley Hemophilia CenterFounded in 1959 by Mary M. Gooley with the help of the Rochester Chapter of the National Hemophilia Foundation (NHF), the Mary M. Gooley Hemophilia Center, located in Rochester New York, has been serving people who suffer from bleeding and blood-related disorders for over 50 years. Our Center was one of the first NHF chapters chartered outside of New York City, and the first free-standing comprehensive care clinic in the nation. We are one of very few combined treatment centers and chapters in the country. |
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Medical Motor ServicesMedical Motor Service is a non-profit community organization that provides specialized transportation. We strive to achieve the highest level of safety and customer satisfaction in order to improve the quality of life for people with specialized transportation needs. Medical Motor Service is unique in Rochester and Monroe County, as it is the only not for profit transportation agency whose sole purpose is the provision of specialized transportation services. Medical Motor Service collaborates with a broad range of other not for profit agencies to ensure that people gain access to health and social services. |
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Mended Hearts (Chapter 50 Rochester, New York)Mended Hearts provides help, support, and encouragement to heart disease patients and their families in the Greater Rochester Area through monthly meetings and visiting patients at Rochester General and Strong Memorial Hospitals. Mended Hearts, a national nonprofit organization affiliated with the American Heart Association, has been offering the gift of hope to heart disease patients, their families and caregivers for more than 50 years. Mended Hearts meets at the Henrietta Volunteer Ambulance Facility, 280 Calkins Rd, Henrietta, the third Monday of the month, at 7:15pm. The satellite chapter in Canandaigua meets at the RG&E Family Room (in the M.M. Ewing Continuing Care Center), Thompson Health, 350 Parrish St, Canandaigua at 7:00pm. All meetings are free and open to the public. For more information call our voice mail at 585-234-1538 or go to our website at www.mendedheartsrochester.org |
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Mended Little Hearts of Greater RochesterMended Little Hearts of Greater Rochester is a nonprofit organization that provides hope, caring and support to families who have children with Congenital Heart Defects (CHD) and heart disease. Membership is free and open not only to parents and caregivers of these special children, but also to heart defect survivors, extended family members, healthcare partners, neighbors, friends and anyone else interested in furthering the outreach and support network of MLH. For more information about Mended Little Hearts, contact Jennifer Kowal at rochesterny@mendedlittlehearts.org or call 585-398-7112. |
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Mental Health AssociationThe Mental Health Association promotes lasting mental wellness through a spectrum of culturally competent programs and services. We help people find the tools and resources that they need to achieve and maintain mental wellness. For over 70 years, we have promoted mental wellness in our community through educational programming, referral to needed services and individualized support and assistance to those in greater need. All of our programs focus on increasing each person's ability to take care of him/herself as they move back and forth along the continuum of mental wellness. We want people to leave the Mental Health Association knowing how to recognize when they need help and the know-how to follow the steps to get it. |
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Monroe County Medical Reserve CorpsThe Monroe County Medical Reserve Corps (MCMRC) is a group of volunteers from health and other fields that serve and support the Monroe County community during public health emergencies and at other times of community need. |
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National Alliance On Mental Illness of Greater Rochester (NAMI)The National Alliance On Mental Illness is dedicated to providing support, education and advocacy to persons and families living with mental illness. For twenty eight years the self -help volunteer driven organization has been serving people of all cultures in Monroe and surrounding counties. We are an independent nonprofit (501c3) agency governed by a Board of Directors and affiliated with NAMI/New York State and NAMI National. We provide a forum for individuals and families to explore effective ways of coping with mental illness. We make available information about mental illness, the service delivery system, community programs and resources, mental health legislation and other associated issues. The National Alliance On Mental Illness has numerous programs including monthly support meetings, classes and educational seminars. The organization strives to improve attitudes and reduce stigma towards mental illness and to advocate on behalf of persons living with mental illness and their families. |
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National Kidney Foundation Upstate New YorkNKF Serving Upstate New York supports kidney disease and transplant patients through research, patient support groups, public and professional educational programs, and a transportation reimbursement fund for low-income patients. More than 10,000 area residents are on dialysis and thousands wait for kidney transplants. NKF Serving Upstate New Yorkhas a broad area of responsibility to serve individuals in the counties of Chemung, Livingston, Monroe, Ontario, Schuyler, Seneca, Steuben, Wayne and Yates. |
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National Multiple Sclerosis Society (Upstate NY Chapter)The present Upstate New York Chapter of the National Multiple Sclerosis Society was founded by a small group of people with multiple sclerosis in Rochester, New York. The Upstate New York Chapter is nationally recognized as a leader in providing comprehensive service programs for nearly 12,000 people with MS and their families in 50 counties and we continue to remain dedicated "to ending the devastating effects of multiple sclerosis". |
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Ontario ARC (Ontario County, New York)Ontario ARC is a not-for-profit organization dedicated to assisting individuals with developmental disabilities and their families. We offer personalized services and supports that promote independence, recognize individual uniqueness and value quality of life. We at Ontario ARC, envision a community where people with developmental disabilities are welcomed, involved and respected. To achieve this, we live by our values, creating opportunities for individual growth, decision-making, choice and access to services. |
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Parkinson Support Group of Upstate New York (PSGUNY)Parkinson Support Group of Upstate New York (PSGUNY) has a three-fold mission to support and assist those with Parkinson's disease, their families, care givers and care partners in adapting more positively to the physical, emotional and social changes associated with Parkinson's disease. SUPPORT people with Parkinson's disease and their families; EDUCATE the community about Parkinson's disease; FIND A CURE for Parkinson's disease by supporting research. |
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Perinatal Network of Monroe CountyThe Perinatal Network of Monroe County provides information, coordination, and support services to improve maternal/child health in Monroe County, New York. We are an independent non-profit (501c3) agency governed by a Board of Directors. We are supported by funding from the Federal Health Resources and Services Administration (Healthy Start), the New York State Department of Health Bureau of Women's Health (Comprehensive Prenatal Perinatal Services Network), Rochester Primary Care Network, and the Greater Rochester Health Foundation, with additional support from individual and corporate donors. |
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Rochester Celiac Support GroupA support group for people with celiac disease and gluten intolerance in the Greater Rochester, New York area. An affiliate of the Gluten Intolerance Group. |
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Rochester Eating Disorder Organization (REDO)The Rochester Eating Disorder Organization (REDO) is a non-profit community eating disorders program located in Rochester, NY, that has been helping people overcome problems such as Anorexia, Bulimia, and compulsive or binge eating (overeating) since 1982. We offer weekly support groups and can also provide referrals to professional health care providers as well as health information and literature. Our mission is to provide education and support for individuals who are concerned about unhealthy eating. The goal of our support groups is to promote personal wellness, a healthy relationship with food, and a positive body image. |
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Rochester Hearing and Speech Center (RHSC)For 85 years, Rochester Hearing and Speech Center (RHSC), a non-profit, United Way agency, has served Rochester and surrounding Upstate New York counties. Rochester Hearing and Speech Center identifies, evaluates and provides treatment for children and adults with speech, language and hearing problems. |
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Rochester RehabilitationWork. Wellness. Independence. These three values have remained at the core of our organization since 1919 when we began meeting the needs of people with disabilities and other disadvantages. Today, we continue this mission: to help people lead a full and active life by delivering outstanding employment, health and wellness, and driver services. It is our hope that everyone who wants to can lead a full and active life. Annually, more than 5,000 people receive services, or participate in programs at Rochester Rehabilitation. |
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Rochester/Finger Lakes Eye & Tissue BankRochester/Finger Lakes Eye & Tissue Bank recovers, processes, preserves and distributes eyes and other tissue for transplant, research and medical education; teaches about tissue and organ donation through its public and professional awareness programs; funds transplant-related medical research; and maintains the Regional Donor Pledge Registry. Trained and certified RETB/FLETB tissue bank staff recover ocular, musculoskeletal, skin and cardiovascular tissues. Tissue bank coordinators then process, preserve and distribute this tissue for transplant, research and medical education. |
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Ronald McDonald House Charities of RochesterRonald McDonald House Charities of Rochester provides a home-away-from-home for families who need to near their children while they are receiving health care in Rochester area hospitals. Further, it supports the health and well being of children and their families in the broader Rochester community by awarding grants. Committed volunteers are an essential element in our success. The mission of Ronald McDonald House Charities of Rochester, NY is to create, find, and support programs that directly improve the health and well being of children. |
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School of the Holy ChildhoodThe School of the Holy Childhood, a non-denominational, non-profit agency, has enriched the lives of people with developmental disabilities for more than 60 years. Our Mission is to prepare children and adults with developmental disabilities for maximum independence and integration in the community through individualized programs and services, in keeping with the philosophy and vision of our founders. We are dedicated to serving our people in an atmosphere of dignity and compassion. |
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Serenity HouseSerenity House provides specialized care for the terminally ill, their families and loved ones. Our home, comfortable and tranquil, is an ideal alternative to hospitals, nursing homes, and in-house care. Respect and support for the terminally ill are reflected in our work at Serenity House. Our home, hearts and hands are open to provide a warm, accepting and supportive environment for residents and their loved ones. For those nearing the end of a terminal illness, we will address their physical, emotional, and spiritual needs. We allow them to leave this world with dignity. This holistic, supportive environment also extends into the bereavement process. |
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SIS (SUSTAIN~ INSPIRE~ SURVIVE)The SIS Mission: SIS is committed to improving the quality of life of those battling breast cancer. We do this by providing financial assistance, essential services and quality of life enhancements during treatment to those in need. Behind The Mission: SIS is a non-profit organization established to support patients and survivors who have been afflicted by breast cancer. By providing loving guidance, funding, care and knowledge, we help them regain their dignity and self-esteem as well as emotional and physical beauty. |
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Spiritus Christi Mental Health CenterThe mission of the Spiritus Christi Mental Health Center is to improve community health by providing access to mental health care for adults and children who are uninsured or underinsured. Our volunteer staff of nurses, therapists, doctors, counselors, social workers and advocates provide consultations and medications free of charge. |
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The Mocha ProjectThe MOCHA Project (Men of Color Health Awareness) is a peer driven initiative which has been in existence since December 1996. MOCHA provides HIV/AIDS education/outreach, and community development for men of color who are identified as gay, bi-sexual or men who have sex with men (MSM) or young men who have sex with men (YMSM). Currently, several funding sources support MOCHA Project's programs to provide education, prevention & intervention to youth who are MSM's of color and may be at risk for contracting the HIV virus. |
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Threshold Center at Community PlaceThreshold Center at Community Place includes a Health Center that provides a unique opportunity for adolescents aged 12-26 to receive primary and reproductive care in a confidential, comfortable setting. The center is located at 145 Parsells Avenue on bus line No 2 and easily accessed through walk-in or scheduled appointment. It is open evenings till 7 PM on Tuesday, Wednesday and Thursday as well as Saturday 10-2. |
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Transplant Awareness Organization of Greater RochesterTAO is an association of individuals that have undergone transplant surgery. TAO members provide support for other transplant recipients, candidates and their families. By sharing their personal experiences, these former patients complement the counseling provided by physicians, social workers and other health care professionals by offering special understanding that comes only from experiencing a transplant firsthand. In addition to offering support, TAO members also participate in special events throughout the year to promote organ donor awareness. TAO of Greater Rochester is a non-profit organization working to improve the quality of life of transplant candidates, recipients and their families. |
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Traumatic Brain Injury Foundation TBIFTraumatic Brain Injury Foundation TBIF, Inc. is a New York State organized not-for-profit 501(c)(3)corporation created to aid children who have suffered a traumatic brain injury (TBI) and their families/caregivers. TBIF, Inc. provides support, education, guidance, and advocacy during in hospital treatment, all phases of rehabilitation, and the transition from hospital to home and home to school. |
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True Child Within (Providing Support and Advocacy for Pediatric Bipolar Disorder)True Child Within held it's first meeting in October, 2002 as a support group for parents with bipolar children. Four months later in March of 2003, we became a local chapter of the Depression and Bipolar Support Alliance (DBSA), a national organization dedicated to improving the lives of those with mood disorders. The group's name at that time, and for the next five years, was DBSA Parents with Bipolar Children, Rochester NY. Under our affiliation with DBSA, we became a corporation and received status as a 501 (c3) organization. |
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Veterans Outreach Center - Clinical Services / SupportVeterans Outreach Center offers several clinical and support services: Counseling and Case Management: Time-limited psychotherapy for veterans and their immediate families is available to help them cope with posttraumatic stress disorder, family difficulties, personal issues, chemical dependency, and any concerns relating to their military experience. You may contact our Clinical staff with questions or to schedule an appointment at 1-585-546-1081 or toll-free at 1-866-906-VETS (8387). Time-limited psychotherapy for veterans and their immediate families is available to help them cope with posttraumatic stress disorder, family difficulties, personal issues, chemical dependency, and any issues relating to their military experience. Crisis intervention and outreach services are provided to homeless veterans, those at risk for homelessness and others who are in need of immediate care. |
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Visting Nurse ServiceVisiting Nurse Service (VNS) offers complete home health care services for newborns to seniors, whether acutely ill, temporarily disabled or requiring long-term care. You can trust our staff will be professional, caring and responsive. As a full service, not-for-profit, Medicare-certified home health agency, VNS provides nursing care, physical, occupational, and speech therapists, home health assistants, hospice care, medical social work and infusion therapy. |
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Wayne ARCWayne ARC assists, supports and learns from persons with or without special needs and their families. In partnership, each person's needs are identified and a plan of action is cooperatively established to access all available supports and services. Wayne ARC employees are charged with carrying out this Vision and are supported in using their best judgment. The indicator of success as an organization is when each person believes that the action plan and its implementation are meeting his/her needs. |
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Local not-for-profit health-related community service agencies and support groups with a website can submit their agency or group by contacting Rochester Health. Please include a short description of the agency or group and include the website address. Please contact Rochester Health if the agency/group description needs updating.
Non-for-profit service agencies and support groups serving the counties of Monroe, Genesee, Livingston, Ontario, Orleans and Wayne are eligible to be listed.
Interested in volunteering for a not-for-profit organization? Vist NY Volunteers.
